Belonging to a Community of Care: Mothers' Experiences of Online Peer Support Groups for Parents Having Lost a Child with Congenital Heart Defects
Title
Belonging to a Community of Care: Mothers' Experiences of Online Peer Support Groups for Parents Having Lost a Child with Congenital Heart Defects
Creator
Klarare A; Carlsson T; Mattsson E
Identifier
Publisher
Death Studies
Date
2020
Subject
Child death; mother grief; peer support; parent support
Description
The aim was to study mothers' experiences of online peer support groups after the death of a child. Participants (N = 8) were recruited through a newsletter for the Swedish association for families/children with heart defects, and two closed support groups on Facebook (900 and 100 members) and interviewed by telephone. Transcripts were analyzed with qualitative content analysis. The groups were available around the clock, regardless of support need, and mothers joined both to receive and provide support. Participation in online peer support groups may provide a sense of belonging to a caring community and serve as a valuable complement to healthcare.
Rights
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Citation List Month
Special Edition #1 2022 List
URL Address
Collection
Citation
Klarare A; Carlsson T; Mattsson E, “Belonging to a Community of Care: Mothers' Experiences of Online Peer Support Groups for Parents Having Lost a Child with Congenital Heart Defects,” Pediatric Palliative Care Library, accessed April 20, 2024, https://pedpalascnetlibrary.omeka.net/items/show/17862.