Exploring Parental Decision Making for a Child With a Life-Limiting Condition: An Interpretive Description Study

Title

Exploring Parental Decision Making for a Child With a Life-Limiting Condition: An Interpretive Description Study

Creator

Yazdani N; Chartrand J; Stacey D

Publisher

Journal of Hospice & Palliative Nursing

Date

2022

Subject

decision making; decision support; palliative care; parents; pediatric nursing

Description

The purpose of this study was to explore parents' and health care professionals' perception of parents' experiences in making decisions between acute and palliative therapies along the trajectory of their child's life-limiting condition. An interpretive description qualitative study was conducted. Semistructured interviews were completed with 6 parents and 6 health care professionals. Qualitative thematic analysis was used to identify, analyze, and report 4 themes: (1) "Going by your heart and gut": the process of making a unique decision; (2) "Not black and white": experiencing decisional conflict when making difficult decisions; (3) "Widening the circle of care": various sources of decision-making support; and (4) "Always a worry": concerns regarding parents' decision quality and outcomes. Parents described experiencing decisional conflict when making health care decisions for their child with a life-limiting condition. Decision support provided by health care professionals in an interprofessional manner was preferred and supplemented by a parent-based support network. Reassurance regarding their good parenting from health care professionals was described as supportive throughout the decision-making experience.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

March 2022 List

Collection

Citation

Yazdani N; Chartrand J; Stacey D, “Exploring Parental Decision Making for a Child With a Life-Limiting Condition: An Interpretive Description Study,” Pediatric Palliative Care Library, accessed February 27, 2024, https://pedpalascnetlibrary.omeka.net/items/show/17846.