Perceptions of specialty palliative care and its role in pediatric stem cell transplant: A multidisciplinary qualitative study

Title

Perceptions of specialty palliative care and its role in pediatric stem cell transplant: A multidisciplinary qualitative study

Creator

Collins GS; Beaman H; Ho AM; Hermiston ML; Cohen HJ; Dzeng EW

Identifier

Publisher

Pediatric Blood and Cancer

Date

2022

Subject

pediatric; psychosocial; palliative care; quality of life; qualitative research; stem cell transplantation; BMT

Description

Background: Consultation of specialty palliative care remains uncommon in pediatric stem cell transplant (SCT) despite growing evidence that early integration of palliative care improves outcomes in patients with advanced cancers or undergoing SCT. Little is known about how multidisciplinary pediatric SCT teams perceive palliative care and its role in SCT. Procedure: We conducted semistructured interviews of members of a multi-disciplinary SCT team to understand their perceptions of palliative care, how specialty palliative care is integrated into SCT, and to identify barriers to increased integration. Eligible participants included physicians, nurses, inpatient nurse practitioners, social workers, and child life specialists. Data were analyzed using thematic analysis. Result(s): Four major themes were identified. First, SCT team members held a favorable perception of the palliative care team. Second, participants desired increased palliative care integration in SCT. Third, participants believed that the palliative care team had insufficient resources to care for the large number of SCT patients, which led to the SCT team limiting palliative care consultation. And, finally, the lack of a standardized palliative care consultation process prevented greater integration of palliative care in SCT. Conclusion(s): SCT team members held a favorable perception of palliative care and saw a role for greater palliative care integration throughout the SCT course. We identified modifiable barriers to greater palliative care integration. SCT teams who desire greater palliative care integration may adapt and implement an existing model of palliative care integration in order to improve standardization and increase integration of specialty palliative care in SCT. Copyright © 2021 Wiley Periodicals LLC

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

January 2022 List

Collection

Citation

Collins GS; Beaman H; Ho AM; Hermiston ML; Cohen HJ; Dzeng EW, “Perceptions of specialty palliative care and its role in pediatric stem cell transplant: A multidisciplinary qualitative study,” Pediatric Palliative Care Library, accessed May 22, 2022, https://pedpalascnetlibrary.omeka.net/items/show/17768.

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