Parental experiences of the liminal period of a child's fatal illness

Title

Parental experiences of the liminal period of a child's fatal illness

Creator

Janusz B; Walkiewicz M

Publisher

Health

Date

2021

Subject

cancer and palliative care; child; death dying and bereavement; experiencing illness and narratives; grounded theory; patient-physician relationship

Description

The article offers a description of parents' experiences of their child's ultimately fatal illness as it unfolds over the successive stages of medical treatment, in the context of the liminality theory. The parents (N = 23) were interviewed 1-4 years after their child's death. The research method involved conducting narrative interviews with parents in order to obtain a spontaneous narration of the child's illness as it unfolded. The grounded theory approach, including the narrative and performative aspects of such parental utterances, was applied as the main research strategy. The results provide insight into the main areas and processes of common parental experiences, such as the pervasive sense of becoming trapped in timelessness and ambiguity. Further states reported by parents included oscillating between a distancing stance and involvement, and a dualistic relationship with medical staff and the medical system: between alignment and disharmony. The study indicates the importance of treating delivery of such a diagnosis as a process rather than as a one-time event. The sense of ambiguity is treated as a kind of necessary parental coping mechanism, whilst the sense of timelessness gives parents a unique sense of time in which they do not have to think about the child's potentially imminent death.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

November 2021 List

Collection

Citation

Janusz B; Walkiewicz M, “Parental experiences of the liminal period of a child's fatal illness,” Pediatric Palliative Care Library, accessed May 16, 2022, https://pedpalascnetlibrary.omeka.net/items/show/17718.

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