Decision-making in imminent extreme premature births: perceived shared decision-making, parental decisional conflict and decision regret

Title

Decision-making in imminent extreme premature births: perceived shared decision-making, parental decisional conflict and decision regret

Creator

Geurtzen R; van den Heuvel JFM; Huisman JJ; Lutke Holzik EM; Bekker MN; Hogeveen M

Publisher

Journal of Perinatology.

Date

2021

Subject

Decision Making; Paediatrics; Quality of life; Palliative care; premature birth; Medical ethics

Description

Objective: To describe levels of perceived shared decision making (SDM), decisional conflict (DC), and decision regret (DR) in prenatal counseling by pregnant women, partners, neonatologists, and obstetricians regarding decision-making around imminent extreme premature birth in which a decision about palliative comfort care versus early intensive care had to be made. Study design: Multicenter, cross-sectional study using surveys to determine perceived SDM at imminent extreme premature birth in parents and physicians, and to determine DC and DR in parents. Result(s): In total, 73 participants from 22 prenatal counseling sessions were included (21 pregnant women, 20 partners, 14 obstetricians, 18 neonatologists). High perceived levels of SDM were found (median 82,2), and low levels of DC (median 23,4) and DR at one month (median 12, 5). Conclusion(s): Reported levels of self-perceived SDM in the setting of prenatal counseling in extreme prematurity were high, by both the parents and the physicians. Levels of DC and DR were low. Copyright © 2021, The Author(s), under exclusive licence to Springer Nature America, Inc.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

September 2021 List

Collection

Citation

Geurtzen R; van den Heuvel JFM; Huisman JJ; Lutke Holzik EM; Bekker MN; Hogeveen M, “Decision-making in imminent extreme premature births: perceived shared decision-making, parental decisional conflict and decision regret,” Pediatric Palliative Care Library, accessed December 3, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17659.

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