Leveraging Grief: Involving Bereaved Parents in Pediatric Palliative Oncology Program Planning and Development

Title

Leveraging Grief: Involving Bereaved Parents in Pediatric Palliative Oncology Program Planning and Development

Creator

Spraker-Perlman HL; Aglio T; Kaye EC; Levine D; Barnett B; Berry-Carter K; McNeil M; Clark L; Baker JN

Publisher

Children

Date

2021

Subject

Program Development; oncology; pediatric palliative care; bereaved parents; bereavement care; pediatric oncology bereavement

Description

As pediatric palliative care (PPC) became a recognized medical specialty, our developing clinical PPC team longitudinally partnered with bereaved parents to understand the care that their children received as they transitioned towards end of life. Families developed Eight Priorities, shared within, to improve care for children with a poor chance of survival based on their experience of losing a child to cancer. In this paper, we delineate the top eight PPC needs from a parent perspective to offer multi-layered, individually tailored resources for patients and families. One of these Eight Priorities noted that bereavement care for the remaining family members is vital for healing after the death of a child to promote meaning making and resilience in bereaved families. Here, we outline the creation of a bereaved parent-designed bereavement support program as one example of how we have partnered with parents to fulfill their Eight Priorities for quality care.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

August 2021 List

Collection

Citation

Spraker-Perlman HL; Aglio T; Kaye EC; Levine D; Barnett B; Berry-Carter K; McNeil M; Clark L; Baker JN, “Leveraging Grief: Involving Bereaved Parents in Pediatric Palliative Oncology Program Planning and Development,” Pediatric Palliative Care Library, accessed May 27, 2022, https://pedpalascnetlibrary.omeka.net/items/show/17614.

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