Palliative care for children and young people with stage 5 chronic kidney disease

Title

Palliative care for children and young people with stage 5 chronic kidney disease

Creator

Craig F; Henderson EM; Patel B; Murtagh FEM; Bluebond-Langner M

Publisher

Pediatric Nephrology.

Date

2021

Subject

advance care planning; conservative management; kidney failure; palliative care; Stage 5 chronic kidney disease (CKD 5); symptom management

Description

Death from stage 5 chronic kidney disease (CKD 5) in childhood or adolescence is rare, but something that all paediatric renal physicians and most paediatricians will encounter. In this paper, we present the literature on three key areas of palliative care practice essential to good clinical management: shared decision-making, advance care planning, and symptom management, with particular reference to CKD 5 where kidney transplant is not an option and where a decision has been made to withdraw or withhold dialysis. Some areas of care, particularly with regard to symptom management, have not been well-studied in children and young people (CYP) with CKD 5 and recommendations with regard to drug choice and dose modification are based on adult literature, known pharmacokinetics, and clinical experience. Copyright © 2021, Crown.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

July 2021 List

Collection

Citation

Craig F; Henderson EM; Patel B; Murtagh FEM; Bluebond-Langner M, “Palliative care for children and young people with stage 5 chronic kidney disease,” Pediatric Palliative Care Library, accessed September 29, 2022, https://pedpalascnetlibrary.omeka.net/items/show/17590.

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