Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol

Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol

Akard TF; Davis K; Hills T; Lense M; Kim D; Webber R; Dietrich MS; Gilmer MJ

Contemporary Clinical Trials Communications

2021

Hospice and palliative care nursing; music therapy; palliative care; palliative medicine; pediatrics; songwriting

Investigations evaluating the effectiveness of music-based interventions as a complementary approach to symptom management and health promotion for cognitively-impaired children with life-limiting conditions and their families are needed to minimize the physical and psychological burdens on individuals and their caregivers. Songwriting is one music-based strategy for a remote family-centered complementary approach to improve outcomes for cognitively-impaired children with life-limiting conditions, their parents, and families. The overall purpose of this study is to test the feasibility and preliminary efficacy of a songwriting intervention for cognitively-impaired children (ages 5-17 years) who are receiving palliative or complex care and their parents. Specific aims are to: (1) determine the feasibility of songwriting for cognitively-impaired children with life-limiting conditions and their parents, and (2) examine preliminary efficacy of songwriting for child psychological distress and physical symptoms, parent psychological distress, and family environment. The protocol for this 1-group pre-and post-intervention clinical trial (N = 25) is described. Copyright © 2021

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