Pediatric Chronic Critical Illness, Prolonged ICU Admissions, and Clinician Distress

Title

Pediatric Chronic Critical Illness, Prolonged ICU Admissions, and Clinician Distress

Creator

Miles AH; Rushton CH; Wise BM; Moore A; Boss RD

Publisher

Journal of Pediatric Intensive Care.

Date

2021

Subject

Chronic critical illness; communication; health teams; interdisciplinary; palliative care; pediatric intensive care unit

Description

To gain an in-depth understanding of the experience of pediatric intensive care unit (PICU) clinicians caring for children with chronic critical illness (CCI), we conducted, audiotaped, and transcribed in-person interviews with PICU clinicians. We used purposive sampling to identify five PICU patients who died following long admissions, whose care generated substantial staff distress. We recruited four to six interdisciplinary clinicians per patient who had frequent clinical interactions with the patient/family for interviews. Conventional content analysis was applied to the transcripts resulting in the emergence of five themes: nonbeneficial treatment; who is driving care? Elusive goals of care, compromised personhood, and suffering. Interventions directed at increasing consensus, clarifying goals of care, developing systems allowing children with CCI to be cared for outside of the ICU, and improving communication may help to ameliorate this distress. Copyright © 2021 Thieme India. All rights reserved.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

May 2021 List

Collection

Citation

Miles AH; Rushton CH; Wise BM; Moore A; Boss RD, “Pediatric Chronic Critical Illness, Prolonged ICU Admissions, and Clinician Distress,” Pediatric Palliative Care Library, accessed July 30, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17543.

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