Pediatric Palliative Care for Children With Severe Neurological Impairment and Their Families

Title

Pediatric Palliative Care for Children With Severe Neurological Impairment and Their Families

Creator

Bogetz JF; Lemmon ME

Publisher

Journal of Pain and Symptom Management

Date

2021

Subject

disability; complex chronic conditions; Pediatric; neuropalliative care; severe neurologic impairment

Description

Up to 40% of patients cared for by pediatric palliative care teams have severe neurologic impairment (SNI). Children with SNI have congenital/chromosomal, central nervous system static or progressive conditions that result in lifelong cognitive disabilities and developmental delay. 1 These children often have complex care coordination and symptom management needs. Many children with SNI receive care from multiple subspecialists at tertiary pediatric hospitals, home nursing care, and developmental services through school or community programs. Palliative care teams can have a large impact through the ways they support these patients and families psychosocially, symptomatically, spiritually, and emotionally. 1

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

April 2021 List

Collection

Citation

Bogetz JF; Lemmon ME, “Pediatric Palliative Care for Children With Severe Neurological Impairment and Their Families,” Pediatric Palliative Care Library, accessed September 16, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17498.

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