Pediatric Palliative Care for Children With Severe Neurological Impairment and Their Families
Title
Pediatric Palliative Care for Children With Severe Neurological Impairment and Their Families
Creator
Bogetz JF; Lemmon ME
Identifier
Publisher
Journal of Pain and Symptom Management
Date
2021
Subject
disability; complex chronic conditions; Pediatric; neuropalliative care; severe neurologic impairment
Description
Up to 40% of patients cared for by pediatric palliative care teams have severe neurologic impairment (SNI). Children with SNI have congenital/chromosomal, central nervous system static or progressive conditions that result in lifelong cognitive disabilities and developmental delay. 1 These children often have complex care coordination and symptom management needs. Many children with SNI receive care from multiple subspecialists at tertiary pediatric hospitals, home nursing care, and developmental services through school or community programs. Palliative care teams can have a large impact through the ways they support these patients and families psychosocially, symptomatically, spiritually, and emotionally. 1
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Citation List Month
April 2021 List
Collection
Citation
Bogetz JF; Lemmon ME, “Pediatric Palliative Care for Children With Severe Neurological Impairment and Their Families,” Pediatric Palliative Care Library, accessed June 9, 2023, https://pedpalascnetlibrary.omeka.net/items/show/17498.