Parent Perceptions of Team-Delivered Care for Children with Advanced Cancer: A report from the PediQUEST study

Title

Parent Perceptions of Team-Delivered Care for Children with Advanced Cancer: A report from the PediQUEST study

Creator

Feraco A M; Ananth P; Dussel V; Al-Sayegh H; Ma C; Rosenberg A R; Feudtner C; Wolfe J

Publisher

Journal of Pain and Symptom Management

Date

2020

Subject

Pediatric Oncology; Childhood Cancer; Interdisciplinary Care; Interprofessional Healthcare Teams; Multidisciplinary Care; Psychosocial Oncology; Team-Delivered Care

Description

CONTEXT: Childhood cancer care is delivered by interprofessional healthcare teams however little is known about how parents perceive overall team-delivered care (TDC). OBJECTIVES: We sought to describe parent perceptions of TDC and associated factors, including care rendered by individual clinicians, teamwork, information consistency, and patient and parent characteristics. METHODS: Cross-sectional surveys were distributed to parents of 104 children with recurrent/refractory cancer enrolled in a multi-site symptom management trial. The primary outcome, TDC, was parent report of care quality delivered by the child's care team during the preceding 3 months. Likert scaled items (excellent/very good/good/fair/poor) queried care quality delivered by individual clinicians, perceived teamwork and other factors. Factors associated with parent perceptions of "excellent" TDC were identified using Fisher's Exact test. RESULTS: Eighty-six parents (83%) responded. Over the preceding 3 months, 63% (n=54) of parents reported excellent TDC. However, only 47% (n=40) described their care team's teamwork as excellent. Approximately one-quarter (24%) described care rendered by their child's oncologist as less-than-excellent. Among parents who reported psychosocial clinician involvement (71%, n=60), only 43% described this care as excellent. Individually, excellent care from each clinician type (oncologist, psychosocial clinician, primary nurse) was associated with excellent TDC (all p

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

Oncology 2020 List

Collection

Citation

Feraco A M; Ananth P; Dussel V; Al-Sayegh H; Ma C; Rosenberg A R; Feudtner C; Wolfe J, “Parent Perceptions of Team-Delivered Care for Children with Advanced Cancer: A report from the PediQUEST study,” Pediatric Palliative Care Library, accessed June 15, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17367.

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