Palliative Care Knowledge and Characteristics in Caregivers of Chronically Ill Children

Title

Palliative Care Knowledge and Characteristics in Caregivers of Chronically Ill Children

Creator

Johnston E E; Currie E R; Chen Y; Kent E E; Ornstein K A; Bhatia S; Dionne-Odom J N; Rosenberg A R

Publisher

Journal of hospice and palliative nursing

Date

2020

Subject

children with special health care needs; complex chronic conditions; palliative care; pediatrics

Description

There is a growing population of children with complex chronic conditions (CCCs) whose caregivers would benefit from palliative care (PC). However, little is known about caregivers' PC awareness. We aimed to describe PC awareness among caregivers of children with CCCs and identify factors associated with lack of PC awareness. We used the National Cancer Institute's national Health Information National Trends Survey 2018 data to determine the percentage of caregivers of ill children who have PC awareness. After matching, caregiver PC awareness was compared with that of (1) the general survey population, (2) other caregivers, and (3) caregivers not caring for children. We used multivariable regression to determine factors associated with lack of PC awareness. Of 131 caregivers, 60% had "never heard of" PC. Caregivers of children were no more likely to have heard of PC than the general survey population (P = .76), noncaregivers (P = .97), or caregivers of nonchildren (P = .13). Caregivers younger than 40 years and without a college degree were less likely to have PC awareness than their peers. Most caregivers of ill children have no PC awareness, with no more PC awareness than the general population. Nurses caring for children with CCCs can help educate families and other health care team members about PC.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

November 2020 List

Collection

Citation

Johnston E E; Currie E R; Chen Y; Kent E E; Ornstein K A; Bhatia S; Dionne-Odom J N; Rosenberg A R, “Palliative Care Knowledge and Characteristics in Caregivers of Chronically Ill Children,” Pediatric Palliative Care Library, accessed July 31, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17254.

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