Place bonding' in children's hospice care: a qualitative study


Place bonding' in children's hospice care: a qualitative study


Dunbar H; Carter B; Brown J


BMJ Supportive & Palliative Care




hospice; parent experiences; parent perspectives; parental experience; parental perspectives; pediatrics; place bonding


BACKGROUND: Limited knowledge exists of parents' perceptions and experiences of children's hospices and how these contribute to the varied access and uptake of services. AIM: This study aimed to explore parents' perspectives and experiences of a hospice, to understand the barriers and/or facilitators to accessing a hospice, and what characteristics parents wanted from hospice provision. METHOD(S): A two-phase qualitative study underpinned by a constructivist grounded theory methodology was employed. Phase 1 used focus groups to collect data from parents of children already accessing the hospice (n=24). Phase 2 used in-depth semistructured interviews with parents of children who did not use the hospice (n=7) and with parents who had previous experience of using a hospice (n=7). RESULT(S): A grounded theory of place bonding was developed which illustrates the cognitive journey taken by parents of children with life-limiting conditions considering/receiving hospice care for their child. CONCLUSION(S): Finding a place where they belonged and felt at 'home' made the decision to accept help in caring for their child with a life-limiting condition more acceptable. The theory of place bonding offers children's hospices a new perspective from which to view how parents access, accept and build relationships at the hospice. Copyright © Author(s) (or their employer(s)) 2020. No commercial re-use. See rights and permissions. Published by BMJ.


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Dunbar H; Carter B; Brown J, “Place bonding' in children's hospice care: a qualitative study,” Pediatric Palliative Care Library, accessed July 17, 2024,