Human Touch via Touchscreen: Rural nurses' experiential perspectives on telehealth use in pediatric hospice care

Title

Human Touch via Touchscreen: Rural nurses' experiential perspectives on telehealth use in pediatric hospice care

Creator

Weaver M S; Neumann M L; Navaneethan H; Robinson J E; Hinds P S

Publisher

Journal of Pain and Symptom Management

Date

2020

Subject

communication; coronavirus; hospice care; palliative care; pediatric palliative care; Telehealth; telemedicine

Description

CONTEXT: Telemedicine has the potential to extend care reach and access to home-based hospice services for children. Few studies have explored nurse perspectives regarding this communication modality for rural pediatric cohorts. OBJECTIVES: The objective of this qualitative study was to learn from the experiences of rural hospice nurses caring for children at the end of life using telehealth modalities to inform palliative communication. METHODS: Voice-recorded qualitative interviews with rural hospice nurse telehealth users inquiring on nurse experiences with telehealth. Semantic content analysis was used. RESULTS: Fifteen hospice nurses representing nine rural hospice agencies were interviewed. Nurses participated in an average of eight telehealth visits in the three-months prior. Nurses were female with mean age 38 years and average 7 years hospice nursing experience. Five themes about telehealth emerged: accessible support, participant inclusion, timely communication, informed and trusted planning, and familiarity fostered. Each theme had both benefits and cautions associated as well as telehealth suggestions. Nurses recommended individualizing communication, pacing content, fostering human connection, and developing relationships even with technology use. CONCLUSIONS: The experiences of nurses who utilize telehealth in their care for children receiving end of life care in rural regions may enable palliative care teams to understand both the benefits and challenges of telehealth use. Nurse insights on telehealth may help palliative care teams better honor the communication needs of patients and families while striving to improve care access.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

August 2020 List

Collection

Citation

Weaver M S; Neumann M L; Navaneethan H; Robinson J E; Hinds P S, “Human Touch via Touchscreen: Rural nurses' experiential perspectives on telehealth use in pediatric hospice care,” Pediatric Palliative Care Library, accessed June 19, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17185.

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