"If We Build It, Will They Come?" A Cohort Study of Family Utilization of a Pediatric-Specific Inpatient Hospice Facility (GP709)

Title

"If We Build It, Will They Come?" A Cohort Study of Family Utilization of a Pediatric-Specific Inpatient Hospice Facility (GP709)

Creator

Berkel C; Bernatavicius W; Berger K; Shaw T

Publisher

Journal of Pain and Symptom Management

Date

2020

Subject

end of life care; hospice; pediatric hospice; pediatric specific facilities

Description

Objectives: * Interpret results of this study relative to previous research. * Evaluate the benefits of a pediatric inpatient hospice facility. Importance: Pediatric-specific hospice facilities (PHFs) are gaining interest as an alternative for end-of-life care. The need for these facilities has been called into question by previous research examining preferences of bereaved parents (Kassam, et. al., 2014); however, a PHF was not available to families in that study. The current study addresses this limitation by examining inpatient hospice utilization and location of death before and after the opening of a PHF. Objective(s): Interpret results of this study relative to previous research, Evaluate the benefits of a pediatric inpatient hospice facility. Method(s): We conducted a retrospective cohort study to test the hypotheses that the opening of the PHF would be associated with a greater proportion of 1) families using inpatient hospice care and 2) deaths occurring in hospice. Hospice referral data and location of death were extracted from hospice medical records. Referral date and date of death were dummy coded (i.e., Time 0 = 5 years prior to the opening of the PHF and Time 1 = 0 to 5 years after the opening). Chi-square analyses were used to test hypotheses. Result(s): Providers referred 471 patients during Time 0 and 554 patients during Time 1. There was a significant effect of opening of the PHF on referral outcomes [X2(2)=52.66,p<=.001]. From Time 0 to Time 1, there was a significant increase in the percent of families who engaged in inpatient hospice services (14 vs. 33%). The number of children who died was 188 during Time 0 and 327 during Time 1. Location of death also changed significantly [X2(2)=49.56,p<=.001]. Specifically, there was a significant increase in the percent of children who died while receiving care at an inpatient hospice facility once the PHF opened (23% vs. 55%). Conclusion(s): Providers and families find inpatient hospice to be a desirable option when a pediatric-specific facility is available. Impact: Results may be informative for healthcare organizations who are interested in developing pediatric specific facilities. Copyright © 2020

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

August 2020 List

Collection

Citation

Berkel C; Bernatavicius W; Berger K; Shaw T, “"If We Build It, Will They Come?" A Cohort Study of Family Utilization of a Pediatric-Specific Inpatient Hospice Facility (GP709),” Pediatric Palliative Care Library, accessed June 14, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17159.

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