Engaging Fathers in Pediatric Palliative Care Research

Title

Engaging Fathers in Pediatric Palliative Care Research

Creator

Nicholas D; Beaune L; Belletrutti M; Blumberg J; Ing S; Rapoport A; Barrera M

Publisher

Journal of social work in end of life & palliative care.

Date

2020

Subject

article; Caregiver; child; child health; controlled study; father; health care personnel; human; interview; male; palliative therapy; pediatrics; perception; qualitative research; wellbeing

Description

Fathers are under-represented in pediatric palliative care research despite frequently playing a key role in the lives of their children. The purpose of this study was to identify factors that affected paternal study invitation and participation. A secondary mixed-methods evaluation design guided examination of interview and focus group data as well as field notes from a qualitative study that examined the experiences and support needs of fathers of children with a life-limiting illness. Facilitators of paternal participation in the study consisted of: fathers' desire to gain from study participation either for themselves or others, perception of the study's importance, sense of appreciation for the study's focus on fathers and an established relationship with recruiting health care providers. Barriers to study participation included: recruiting health care providers' appraisal of fathers' lack of well-being, bereaved fathers' self-reported poor coping and the inability to locate and contact fathers, particularly after a child's death. Strategies for improving the engagement of fathers into research entailed: educating recruitment personnel, designing "father-focused" studies, communicating the value of the research to recruitment personnel and potential participants, and ensuring that child health records are accurate and include fathers' contact information.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

March 2020 List

Collection

Citation

Nicholas D; Beaune L; Belletrutti M; Blumberg J; Ing S; Rapoport A; Barrera M, “Engaging Fathers in Pediatric Palliative Care Research,” Pediatric Palliative Care Library, accessed August 2, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17010.

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