Bereaved Parents' Perceptions of Infant Suffering in the NICU

Title

Bereaved Parents' Perceptions of Infant Suffering in the NICU

Creator

Fortney C A; Baughcum A E; Moscato E L; Winning A M; Keim M C; Gerhardt C A

Publisher

Journal of Pain and Symptom Management

Date

2019

Subject

article; clinical decision making; father; female; human; infant; male; mother; neonatal intensive care unit; patient referral; perception; qualitative analysis; telephone interview; wellbeing

Description

BACKGROUND: It is challenging to provide supportive intensive care to infants in the NICU, giving them every chance for survival, while also trying to minimize suffering for both the infant and parents. Parents who believe their infant is suffering may alter treatment goals based on their perceptions, however it is unknown how parents come to believe that their infant may be suffering. AIM: To examine bereaved parents' perceptions of infant suffering in the NICU DESIGN: Parents completed a qualitative interview exploring their perceptions of the level of suffering that their infant experienced at the end of life. SETTING/PARTICIPANTS: Parents whose infant died in a large, Midwestern level IV regional referral NICU from July 2009-July 2014 were invited to participate. 30 mothers and 16 fathers from 31 families (31/249) participated in telephone interviews between 3 months and 5 years after their infant's death.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

February 2020 List

Collection

Citation

Fortney C A; Baughcum A E; Moscato E L; Winning A M; Keim M C; Gerhardt C A, “Bereaved Parents' Perceptions of Infant Suffering in the NICU,” Pediatric Palliative Care Library, accessed July 29, 2021, https://pedpalascnetlibrary.omeka.net/items/show/16889.

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