Incontinence in Individuals with Rett Syndrome: A Comparative Study

Title

Incontinence in Individuals with Rett Syndrome: A Comparative Study

Creator

Giesbers S; Didden R; Radstaake M; Korzilius H; von Gontard A; Lang R; Smeets E; Curfs L M G

Publisher

Journal of Developmental and Physical Disabilities

Date

2012

Subject

children; Rehabilitation; adolescents; epidemiology; disorders; Rett syndrome; behavioral-phenotype; Comparative study; enuresis; females; Incontinence; intellectual disability; mental-retardation; urinary incontinence; bowel incontinence; fecal incontinence; trajectory; characteristics; adaptive functioning

Description

Frequency and type of incontinence and its association with other variables were assessed in females with Rett Syndrome (RS) ( = 63), using an adapted Dutch version of the 'Parental Questionnaire: Enuresis/Urinary Incontinence' (Beetz et al. 1994). Also, incontinence in RS was compared to a control group consisting of females with non-specific (mixed) intellectual disability ( = 26). Urinary incontinence (UI) (i.e., daytime incontinence and nocturnal enuresis) and faecal incontinence (FI) were found to be common problems among females with RS that occur in a high frequency of days/nights. UI and FI were mostly primary in nature and occur independent of participants' age and level of adaptive functioning. Solid stool, lower urinary tract symptoms and urinary tract infections (UTI's) were also common problems in females with RS. No differences in incontinence between RS and the control group were found, except for solid stool that was more common in RS than in the control group. It is concluded that incontinence is not part of the behavioural phenotype of RS, but that there is an increased risk for solid stool in females with RS.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation

Giesbers S; Didden R; Radstaake M; Korzilius H; von Gontard A; Lang R; Smeets E; Curfs L M G, “Incontinence in Individuals with Rett Syndrome: A Comparative Study,” Pediatric Palliative Care Library, accessed July 29, 2021, https://pedpalascnetlibrary.omeka.net/items/show/16663.

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