"You Are Not Alone": Advice Giving for Parents of Children Living with Complex Chronic Conditions

Title

"You Are Not Alone": Advice Giving for Parents of Children Living with Complex Chronic Conditions

Creator

Rafferty KA; Beck GA

Publisher

Health Communication

Date

2019

Subject

complex chronic conditions; Advice; health communication; parental caregivers; pediatric healthcare; social support

Description

Parental advice giving serves as an important form of informational support for parents of children living with complex chronic conditions (CCCs). These messages can provide backchannel insights into social challenges, best practices, and may offer different forms of experiential wisdom garnered from their own parental caregiving experiences. Contributing to the naturalistic, health-context investigations of advice messages, we interviewed 35 parents who discussed their experiences with parenting their medically complex child. Part of the broader interview protocol asked parents about advice they would offer to other parents like them. We conducted a thematic analysis of parents' responses to these questions to understand advice content, form of advice giving messages, challenges experienced by parents, and suggested best practices for managing a child's CCC. We present our findings and discuss implications on educating health care professionals about how to cultivate advice networks and the need for more parent peer mentoring programs.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

September 2019 List

Collection

Citation

Rafferty KA; Beck GA, “"You Are Not Alone": Advice Giving for Parents of Children Living with Complex Chronic Conditions,” Pediatric Palliative Care Library, accessed May 23, 2022, https://pedpalascnetlibrary.omeka.net/items/show/16475.

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