Sibling Relationships Over the Life Course: Growing Up With a Disability

Sibling Relationships Over the Life Course: Growing Up With a Disability

Avieli H; Band-Winterstein T; Araten BT

Qualitative Health Research

2019

lived experience; Israel; qualitative; developmental disability; health; families; interpretive phenomenological analysis

The research explores sibling relationships, and the ways in which they are shaped over the life course by family members, in families with a lifelong disability. In-depth, semistructured interviews were conducted with 15 family units including a parent, a sibling, and an adult sibling with a disability. The content analysis revealed five sibling relationship patterns: (a) "Not a child, but a parent caretaker"-the parent-surrogate sibling; (b) "We somehow grew apart"-the estranged sibling; (c) "It is important for me to maintain some kind of distance"-the bystander sibling; (d) "When there's something they want to tell him, they always send me"-the mediator sibling; and (e) "I love him to death"-the friend sibling. These patterns of adult sibling relationships are discussed in relation to family dynamics, values, and legacies; recommendations for practice and research are made.

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May 2019 List