Sibling Relationships Over the Life Course: Growing Up With a Disability

Title

Sibling Relationships Over the Life Course: Growing Up With a Disability

Creator

Avieli H; Band-Winterstein T; Araten BT

Publisher

Qualitative Health Research

Date

2019

Subject

lived experience; Israel; qualitative; developmental disability; health; families; interpretive phenomenological analysis

Description

The research explores sibling relationships, and the ways in which they are shaped over the life course by family members, in families with a lifelong disability. In-depth, semistructured interviews were conducted with 15 family units including a parent, a sibling, and an adult sibling with a disability. The content analysis revealed five sibling relationship patterns: (a) "Not a child, but a parent caretaker"-the parent-surrogate sibling; (b) "We somehow grew apart"-the estranged sibling; (c) "It is important for me to maintain some kind of distance"-the bystander sibling; (d) "When there's something they want to tell him, they always send me"-the mediator sibling; and (e) "I love him to death"-the friend sibling. These patterns of adult sibling relationships are discussed in relation to family dynamics, values, and legacies; recommendations for practice and research are made.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

May 2019 List

Collection

Citation

Avieli H; Band-Winterstein T; Araten BT, “Sibling Relationships Over the Life Course: Growing Up With a Disability,” Pediatric Palliative Care Library, accessed October 16, 2021, https://pedpalascnetlibrary.omeka.net/items/show/16135.

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