Impact of specialized pediatric palliative care programs on communication and decision-making

Title

Impact of specialized pediatric palliative care programs on communication and decision-making

Creator

Streuli JC; Widger K; Medeiros C; Zuniga-Villanueva G; Trenholm M

Publisher

Patient Education & Counseling

Date

2019

Subject

Children; Communication; Pediatrics; Counseling; Palliative care; Decision-making; Specialized pediatric palliative care program

Description

OBJECTIVE: To summarize and analyze the impact of specialized pediatric palliative care (SPPC) programs on communication and decision-making for children with life-threatening conditions. METHODS: Our search strategy covered MEDLINE, PsycINFO, Cochrane Central Register of Controlled Trials, Web of Science, CINAHL, Scopus, and Embase through September 2018. RESULTS: We reviewed 13 studies analyzing the impact of SPPC programs on communication and decision-making using a wide range of outcome indicators. Study quality was poor in 58% of included papers. SPPC programs improved communication and decision-making between families and healthcare professionals (HCPs), within and between families, and among HCPs. CONCLUSION: SPPC programs generally support and improve communication and decision-making for children with life-threatening conditions, their families and associated HCPs. Families referred to an SPPC program had more discussions with HCPs on a broad variety of topics. However, data on communication with children, siblings, and other family members was scarce and of poor quality. PRACTICE IMPLICATIONS: More research on SPPC program efficacy is needed from the perspective of the ill child, as well as about barriers to end-of-life discussions and the specific aspects of SPPC programs responsible for improving outcomes.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

April 2019 List

Collection

Citation

Streuli JC; Widger K; Medeiros C; Zuniga-Villanueva G; Trenholm M, “Impact of specialized pediatric palliative care programs on communication and decision-making,” Pediatric Palliative Care Library, accessed July 30, 2021, https://pedpalascnetlibrary.omeka.net/items/show/16130.

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