Lived experience of a child's chronic illness and death: A qualitative systematic review of the parental bereavement trajectory

Title

Lived experience of a child's chronic illness and death: A qualitative systematic review of the parental bereavement trajectory

Creator

Dutta O;Tan-Ho G;Choo PY;Ho AHY

Publisher

Death studies

Date

2018

Description

To understand the lived experience of parents who have lost their child to a chronic life-limiting condition, six major databases were searched by adhering to the Preferred Reporting Items for Systematic Review and Meta-Analyses guidelines. Articles were screened for appropriateness using the Sample, Phenomenon of Interest, Design, Evaluation, Research type tool, and relevant qualitative studies were selected for full-text data analysis using Thematic Synthesis. Findings were categorized into 13 themes that were further organized into a four-phase trajectory of parental bereavement experience of child loss, namely: Liminal Margin, Holding Space, Navigating Losses, and Reconstructing Lives. The findings are discussed in the light of existing literature with practical recommendations for enhancing parental bereavement support services.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

November 2018 List

Collection

Citation

Dutta O;Tan-Ho G;Choo PY;Ho AHY, “Lived experience of a child's chronic illness and death: A qualitative systematic review of the parental bereavement trajectory,” Pediatric Palliative Care Library, accessed December 1, 2021, https://pedpalascnetlibrary.omeka.net/items/show/15599.

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