Resilience Rather than Medical Factors: How Parents Predict Quality of Life of Their Sick Newborn

Title

Resilience Rather than Medical Factors: How Parents Predict Quality of Life of Their Sick Newborn

Creator

Ferrand A; Gorgos A; Ali N; Payot A

Publisher

Journal of Pediatrics

Date

2018

Description

OBJECTIVE: To assess the influence of resiliency and stress on parental perspectives of the future quality of life (QOL) of neonatal intensive care unit (NICU) newborns at high risk of neurodevelopmental disability. STUDY DESIGN: We conducted a prospective multicenter questionnaire study. Perspectives from parents of newborns at high risk of disability as per neonatal follow-up criteria were compared with a low-risk group consisting of parents of all other NICU newborns. Parental anxiety and resiliency, measured using Brief Symptom Inventory and Sense of Coherence scales, respectively, were associated with QOL projections. RESULTS: Parents returned 129 (81%) questionnaires. Parents considering their newborn as currently sicker were more stressed (P = .011) and worried about future physical (P < .001) and mental (P < .001) health, QOL (P < .001), coping (P = .019), and financial (P < .001) and emotional (P = .002) impact on the family. Ooverall, there was no difference between parents of high-risk and low-risk newborns on QOL projections. Almost all parents projected a good future QOL. Less resilient parents projected more pain (P = .04), more financial (P = .019), and emotional (P = .031) impact on their family, and were 10 times more likely to predict that their newborn would remain chronically ill. CONCLUSIONS: Parental projection of future QOL of NICU newborns is not associated with risk of disability. Most parents predict overall a good future QOL and focus more on familial impact. The Sense of Coherence scale may be used in clinical settings to identify less resilient parents.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

August 2018 List

Pages

30738-8

Issue

18

Volume

26

Collection

Citation

Ferrand A; Gorgos A; Ali N; Payot A, “Resilience Rather than Medical Factors: How Parents Predict Quality of Life of Their Sick Newborn,” Pediatric Palliative Care Library, accessed November 21, 2018, https://pedpalascnetlibrary.omeka.net/items/show/15537.

Social Bookmarking