From Fear to Confidence: Changing Providers' Attitudes about Pediatric Palliative and Hospice Care

From Fear to Confidence: Changing Providers' Attitudes about Pediatric Palliative and Hospice Care

Vesel T; Beveridge C

Journal of Pain and Symptom Management

2018

educational workshop; hospice; medical education; palliative care; pediatric

CONTEXT: Children have limited access to hospice care: few existing hospice programs have dedicated pediatric teams, and adult hospice providers feel inadequately trained to care for children. OBJECTIVES: The aim of this study is to increase access to pediatric hospice care by empowering adult hospice providers to care for children through a comprehensive education program. Education empowers providers by changing their attitudes from inadequacy to confidence. METHODS: The authors developed a two-day education program to train interdisciplinary teams of adult hospice providers in pediatric care. The curriculum consists of thirteen modules to improve participants' knowledge, skills, and attitudes. Ninety-three providers across the US learned via multiple teaching methods including lectures, role-plays by professional actors, interviews of bereaved parents, and self-reflections. Learning was evaluated with assessments before, immediately after, and 6-months following the program. Responses were compared using a one-sided analysis of variation (ANOVA) with a significance level of alpha<0.05. RESULTS: Participants improved their knowledge in twelve of thirteen modules. Self-reported confidence levels with pediatric care improved significantly in all thirteen modules (p<0.05). After this program, 79% of providers reported feeling better prepared to care for pediatric hospice patients. Qualitative data reinforced that learners felt more prepared to care for pediatric patients. CONCLUSION: A two-day, high intensity low cost community based education program can improve adult providers' knowledge of and skill level with pediatric care, leading to a change in attitude from fear to confidence. This model has the potential to increase access to pediatric hospice care as it utilizes existing adult hospice infrastructure.

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

June 2018 List