Regoaling: a conceptual model of how parents of children with serious illness change medical care goals

Title

Regoaling: a conceptual model of how parents of children with serious illness change medical care goals

Creator

Hill DL; Miller VA; Walter JK; Carroll KW; Morrison WE; Munson DA; Kang TI; Hinds PS; Feudtner C

Publisher

Bmc Palliative Care

Date

2014

Subject

decision making

Description

BACKGROUND: Parents of seriously ill children participate in making difficult medical decisions for their child. In some cases, parents face situations where their initial goals, such as curing the condition, may have become exceedingly unlikely. While some parents continue to pursue these goals, others relinquish their initial goals and generate new goals such as maintaining the child's quality of life. We call this process of transitioning from one set of goals to another regoaling. DISCUSSION: Regoaling involves factors that either promote or inhibit the regoaling process, including disengagement from goals, reengagement in new goals, positive and negative affect, and hopeful thinking. We examine these factors in the context of parental decision making for a seriously ill child, presenting a dynamic conceptual model of regoaling. This model highlights four research questions that will be empirically tested in an ongoing longitudinal study of medical decision making among parents of children with serious illness. Additionally, we consider potential clinical implications of regoaling for the practice of pediatric palliative care. SUMMARY: The psychosocial model of regoaling by parents of children with a serious illness predicts that parents who experience both positive and negative affect and hopeful patterns of thought will be more likely to relinquish one set of goals and pursue a new set of goals. A greater understanding of how parents undergo this transition may enable clinicians to better support them through this difficult process.
2014

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

9-9

Issue

1

Volume

13

Citation

Hill DL; Miller VA; Walter JK; Carroll KW; Morrison WE; Munson DA; Kang TI; Hinds PS; Feudtner C, “Regoaling: a conceptual model of how parents of children with serious illness change medical care goals,” Pediatric Palliative Care Library, accessed September 23, 2021, https://pedpalascnetlibrary.omeka.net/items/show/14918.

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