Innovative approach to providing 24/7 palliative care for children
Title
Innovative approach to providing 24/7 palliative care for children
Creator
Maynard L; Lynn D
Identifier
Publisher
Nursing Children And Young People
Date
2014
Subject
end-of-life care; 24/7; Children’s hospice; paediatric symptom management
Description
This study outlines an innovative, English hospice-based service that provides 24/7 care for children with life-limiting conditions and their families. Operational objectives were: symptom management; open access to families and professionals; choice in place of care and of death; and collaboration to develop shared pathways and management plans. Service standards were audited through questionnaires completed by professionals and families. Findings demonstrated that the nursing team filled a critical gap and met its pre-set standards. Keys to success were: having the right level and mix of specialist and advanced skills; funded on-call arrangements; anticipatory planning; symptom management plans; and clinical supervision. Further recommendations were to develop a multi-agency workforce strategy, and to increase capacity in the children's sector to undertake academic research measuring the impacts of interventions.
2014-07
Rights
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Type
Journal Article
Citation List Month
Backlog
URL Address
Citation
Maynard L; Lynn D, “Innovative approach to providing 24/7 palliative care for children,” Pediatric Palliative Care Library, accessed February 9, 2025, https://pedpalascnetlibrary.omeka.net/items/show/14864.