Chronically ill children and fragile families

Chronically ill children and fragile families

Flegel K

Canadian Medical Association Journal

2014

Health Services; Medical Sciences; Childrens health; Families & family life; Health care access; Chronic illnesses

Now let us consider another family, whose third child was bom with dysplastic lungs. A tracheostomy tube and feed- ing tube are in place. Suction and oxygen are required during tunes of pulmonary infection. One of the parents is taught to do twice-daily chest physiotherapy. This strong family loves this child and gives much of its tune, energy and money to give him the best care, while not neglecting the two older chil- dren. And that is just as well, because if any of this arrange- ment gives way, there are few options. Parents are expected to take the best possible care of every child, regardless of the child's needs and the parents' age, ability and resources. All parents are expected to make sacrifices to care for their chil- dren. But sacrifices can have some scary consequences.

2014-11

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