Chronically ill children and fragile families
Title
Chronically ill children and fragile families
Creator
Flegel K
Identifier
Publisher
Canadian Medical Association Journal
Date
2014
Subject
Health Services; Medical Sciences; Childrens health; Families & family life; Health care access; Chronic illnesses
Description
Now let us consider another family, whose third child was bom with dysplastic lungs. A tracheostomy tube and feed- ing tube are in place. Suction and oxygen are required during tunes of pulmonary infection. One of the parents is taught to do twice-daily chest physiotherapy. This strong family loves this child and gives much of its tune, energy and money to give him the best care, while not neglecting the two older chil- dren. And that is just as well, because if any of this arrange- ment gives way, there are few options. Parents are expected to take the best possible care of every child, regardless of the child's needs and the parents' age, ability and resources. All parents are expected to make sacrifices to care for their chil- dren. But sacrifices can have some scary consequences.
2014-11
Rights
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Type
Journal Article
Citation List Month
Backlog
Citation
Flegel K, “Chronically ill children and fragile families,” Pediatric Palliative Care Library, accessed April 27, 2025, https://pedpalascnetlibrary.omeka.net/items/show/14811.