Life at the interface: adults with "pediatric" disorders of the nervous system

Title

Life at the interface: adults with "pediatric" disorders of the nervous system

Creator

Schor NF

Identifier

Publisher

Annals Of Neurology

Date

2013

Subject

Child; Humans; Neoplasms; Adult; Cerebral Palsy; Epilepsy; Cystic Fibrosis; Heart Defects; Child Development Disorders; Congenital; Pervasive

Description

The increasing longevity of patients with congenital and developmental disorders of the nervous system reflects the palliative and social success of pediatrics in the past 2 decades. This success has resulted in an increasing number of adult patients with residua or sequelae of childhood disease and/or its treatment. It is critically important that residencies and subspecialty fellowships train a cadre of physicians to prepare patients and families for the transition of children with special health care needs to adulthood and to attend to their unique medical, psychological, and social concerns. Health services and education research must better define the needs of this growing population and the best ways to educate their physicians and families and empower them to become as independent as their fullest potential allows.
2013-08

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Citation

Schor NF, “Life at the interface: adults with "pediatric" disorders of the nervous system,” Pediatric Palliative Care Library, accessed July 16, 2024, https://pedpalascnetlibrary.omeka.net/items/show/14772.