End-of-Life Care Policies and Practices in Pediatric Skilled Nursing Facilities
Title
End-of-Life Care Policies and Practices in Pediatric Skilled Nursing Facilities
Creator
Friedman SL; Helm DT; Woodman AC
Identifier
Publisher
The American Journal Of Hospice & Palliative Care
Date
2013
Description
Although most children with intellectual and developmental disabilities reside in the community, a subset of children with severe intellectual disability and complex medical needs reside in pediatric skilled nursing facilities. These children have elevated mortality with end-of-life care (EOLC) routinely provided. The present study explored policies and practice in such settings by surveying administrators, nursing directors, and medical directors in facilities across the United States. In addition to EOLC policies and practices, staff reported on their understanding of definitions of do-not-resuscitate orders, family involvement in EOLC planning, and the availability of in-service training. The presence of an official EOLC policy was associated with higher ratings of perception of effectiveness among staff. Staff felt more prepared and comfortable providing EOLC when in-service training was provided.
2013-10
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
Journal Article
Citation List Month
Backlog
URL Address
Citation
Friedman SL; Helm DT; Woodman AC, “End-of-Life Care Policies and Practices in Pediatric Skilled Nursing Facilities,” Pediatric Palliative Care Library, accessed April 23, 2024, https://pedpalascnetlibrary.omeka.net/items/show/14683.