Assessment of psychosocial outcomes in adolescents and young adults with cancer: a systematic review of available instruments

Title

Assessment of psychosocial outcomes in adolescents and young adults with cancer: a systematic review of available instruments

Creator

Wakefield CE; Patterson P; McDonald FEJ; Wilson HL; Davis E; Sansom-Daly UM

Identifier

Publisher

Clinical Oncology In Adolescents And Young Adults

Date

2013

Subject

Disease Specific

Description

Purpose: Given the burgeoning body of research relating to the psychosocial needs of adolescents and young adults (AYAs) with cancer, this review aimed to evaluate the psychometric properties and appropriateness of the instruments available for use in this unique population. Specifically, we reviewed published instruments developed to assess psychological distress (depression, anxiety, stress, and fear of recurrence), psychological growth (resilience, posttraumatic growth, and benefit finding), unmet needs, coping, quality of life, identity, and mindfulness-based practices and skills in AYAs with cancer. Given the dearth of validated instruments targeting AYAs with cancer, this review also provides a summary of promising measures yet to be formally validated in this population. Methods: Five electronic databases were searched by a team of six researchers, and studies involving AYAs (who have or have had cancer) aged 15–30 years, and published between 1982 and 2012 were reviewed. Of 410 abstracts, 7 instruments were identified as validated in this population, with a further 19 identified as promising. Results: While there are numerous scales to assess psychosocial outcomes in cancer, few have been specifically validated for AYAs affected by cancer, particularly in the domains of psychological distress, psychological growth, coping, unmet needs, and identity. There are relatively more instruments validated, or promising, for assessment of quality of life than scales for other domains. Conclusion: In the AYA context, scale selection should be undertaken with thought directed towards the characteristics of this sample (eg, developmental maturity, literacy, and social context), the practicalities of the setting (eg, available funding and resources, time restrictions, and researcher expertise), and the science underlying the scale (eg, theoretical framework and psychometric properties). While multiple measures of psychosocial outcomes are frequently used in AYAs, further research is clearly needed to provide rigorous evidence of the reliability and validity of these tools in young people affected by cancer.
2013

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

13-27

Issue

1

Volume

3

Citation

Wakefield CE; Patterson P; McDonald FEJ; Wilson HL; Davis E; Sansom-Daly UM, “Assessment of psychosocial outcomes in adolescents and young adults with cancer: a systematic review of available instruments,” Pediatric Palliative Care Library, accessed July 1, 2022, https://pedpalascnetlibrary.omeka.net/items/show/14663.

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