Online focus groups as a tool to collect data in hard-to-include populations: examples from paediatric oncology

Title

Online focus groups as a tool to collect data in hard-to-include populations: examples from paediatric oncology

Creator

Tates K; Zwaanswijk M; Otten R; van Dulmen S; Hoogerbrugge PM; Kamps WA; Bensing JM

Publisher

Bmc Medical Research Methodology

Date

2009

Subject

Humans; Pediatrics; Focus Groups; Medical Oncology; Online Systems; Population

Description

BACKGROUND: The purpose of this article is to describe and evaluate the methodology of online focus group discussions within the setting of paediatric oncology. METHODS: Qualitative study consisting of separate moderated asynchronous online discussion groups with 7 paediatric cancer patients (aged 8-17), 11 parents, and 18 survivors of childhood cancer (aged 8-17 at diagnosis). RESULTS: All three participant groups could be actively engaged over a one-week period. Respondents highly valued the flexibility and convenience of logging in at their own time and place to join the discussion. Adolescent patients and survivors emphasized that the anonymity experienced made them feel comfortable to express their views in detail. The findings indicate a strong preference for online group discussions across all participant groups. CONCLUSION: The findings show that online focus group methodology is a feasible tool for collecting qualitative data within the setting of paediatric oncology, and may offer new opportunities to collect data in other hard-to-include populations. The evaluations seem to indicate that the online group discussions have given participants an opportunity to articulate their experiences and views in a way they might not have done in a traditional group discussion.
2009

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

15-15

Volume

9

Citation

Tates K; Zwaanswijk M; Otten R; van Dulmen S; Hoogerbrugge PM; Kamps WA; Bensing JM, “Online focus groups as a tool to collect data in hard-to-include populations: examples from paediatric oncology,” Pediatric Palliative Care Library, accessed September 19, 2021, https://pedpalascnetlibrary.omeka.net/items/show/14065.

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