Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study
Title
Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study
Creator
Steele R; Derman S; Cadell S; Davies B; Siden H; Straatman L
Identifier
Publisher
International Journal Of Palliative Nursing
Date
2008
Subject
Child; Female; Humans; Male; Canada; Pilot Projects; Patient Acceptance of Health Care; Research Design; Feasibility Studies; Hospices; Hospitals; Respite Care; Pediatric; adolescent; Preschool; infant; Parents/psychology; NET CV; Health Services Research/methods; Catastrophic Illness
Description
The results from a pilot study are reported in this article, part two of a two-part paper. The experiences of parents (six mothers and two fathers) are described as their families transitioned to the Canuck Place Children's Hospice (CPHC) in Canada. The perspectives of non-hospice health care professionals (n=4) involved in the child's care are explored. Data were gathered through audio-taped, semi-structured interviews. Initially, parents and health professionals were unaware that the hospice provided more than just end-of-life services. Parents began to consider hospice care when something changed in their lives that forced them to see things differently. This became the impetus for recognizing that CPCH might be a resource for their family. The prospect of respite care was usually the deciding factor in applying to the hospice. Parents reported benefits of hospice respite for themselves and the whole family. Recommendations for practice and future research are offered, including discussion about the feasibility of the study procedures.
2008
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
Journal Article
Citation List Month
Backlog
URL Address
Collection
Citation
Steele R; Derman S; Cadell S; Davies B; Siden H; Straatman L, “Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study,” Pediatric Palliative Care Library, accessed February 6, 2025, https://pedpalascnetlibrary.omeka.net/items/show/14019.