A qualitative study on the experiences of mothers caring for their children with thalassemia in Athens, Greece
Title
A qualitative study on the experiences of mothers caring for their children with thalassemia in Athens, Greece
Creator
Sapountzi-Krepia D; Roupa Z; Gourni M; Mastorakou F; Vojiatzi E; Kouyioumtzi A; Van Shell S
Identifier
Publisher
Journal Of Pediatric Nursing
Date
2006
Subject
PedPal Lit; Adaptation; Psychological AdultAttitude to Health Child Emotions Female Genetic Screening/psychology Greece Humans Middle Aged Mothers/psychologyProfessional-Family Relations Social SupportThalassemia/nursing
Description
This qualitative study investigated the caregiving experiences of mothers of children with thalassemia. Using a semistructured questionnaire, the researchers interviewed a convenient sample of 19 mothers who have children with thalassemia. A considerable failure to provide information regarding carrier testing prior to marriage or genetic screening for thalassemia during early pregnancy at the time of the participants' pregnancies was noted. Emotional distress, fear of death, and difficulties in dealing with feelings were some of the mothers' concerns. Although they reported that support was provided, approximately half of the subjects wished that support be offered on a more regular basis. Furthermore, most of the mothers stressed that, owing to the tremendous shortage of nursing staff, support services provided by nurses are difficult to obtain.
2006
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
Journal Article
Citation List Month
Backlog
URL Address
Citation
Sapountzi-Krepia D; Roupa Z; Gourni M; Mastorakou F; Vojiatzi E; Kouyioumtzi A; Van Shell S, “A qualitative study on the experiences of mothers caring for their children with thalassemia in Athens, Greece,” Pediatric Palliative Care Library, accessed April 19, 2024, https://pedpalascnetlibrary.omeka.net/items/show/13680.