End-of-life research as a priority for pediatric oncology

Title

End-of-life research as a priority for pediatric oncology

Creator

Hinds PS; Pritchard M; Harper J

Publisher

Journal Of Pediatric Oncology Nursing

Date

2004

Subject

Child; Humans; Grief; Attitude to Death; Child Psychology; Needs Assessment; Adaptation; Psychological; decision making; Family/psychology; social support; Survivors/psychology; Nursing Research/organization & administration; Oncologic Nursing/organization & administration; Terminal Care/organization & administration/psychology; Neoplasms/nursing/psychology; Health Priorities/organization & administration; Pediatric Nursing/organization & administration

Description

Approximately 2,200 children and adolescents die a cancer-related death each year in the United States; of these, almost 90% will die while experiencing 2 to 8 troubling symptoms. With improved symptom control and end-of-life care, these patients might suffer less before they die and their survivors might experience fewer or less intense adverse physical and mental conditions secondary to their bereavement. The focus of this article is on five key areas related to end of life where research is critically needed; (a) the characteristics of cancer-related death and the profiles of survivorship in bereaved family members and health care providers, (b) the trajectory of dying in children and adolescents and a comparison of care delivery preferred by the family and that actually delivered, (c) end-of-life decision making, (d) the financial costs of a child or adolescent dying a cancer-related death and associated policy making, and (e) outcomes of symptom-directed or bereavement interventions. Knowing the characteristics of cancer-related deaths in children and adolescents will help researchers and clinicians develop and test effective interventions related to symptom management, decision making, and availability of care delivery models that match the dying child's needs and preferences. Such interventions could also contribute to the highest quality and cost-effective care being provided to the bereaved survivors.
2004

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

175-179

Issue

3

Volume

21

Citation

Hinds PS; Pritchard M; Harper J, “End-of-life research as a priority for pediatric oncology,” Pediatric Palliative Care Library, accessed July 28, 2021, https://pedpalascnetlibrary.omeka.net/items/show/12727.

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