Families' recommendations for improving services for children with chronic conditions

Title

Families' recommendations for improving services for children with chronic conditions

Creator

Garwick AW; Kohrman C; Wolman C; Blume RW

Publisher

Archives Of Pediatrics & Adolescent Medicine

Date

1998

Description

Background: Little research has been done on services and programs for children with chronic conditions and their families from the perspective of family caregivers from diverse cultural backgrounds. Objective: To identify recommendations that urban caregiving families from 3 major ethnocultural backgrounds have for improving the care of children with chronic conditions (i.e., chronic illnesses and disabilities involving physical health impairments). Design: Qualitative, community-based study. Settings: General community. Participants: The volunteer convenience sample included 21 African American, 20 Hispanic, and 22 European American families from 2 midwestern cities who care for school-aged children with chronic conditions. Methods: In-home semistructured interviews were conducted with each child's family caregivers. Content analytic techniques were used to identify and classify 275 recommendations from 63 families. Results: Families focused on the following 4 topics: (1) improving the quality of health care services; (2) decreasing barriers to services and programs; (3) improving the training that health care professionals, families, and the public receive about chronic conditions and their management; and (4) improving the quality and availability of community-based services. Families from all 3 ethnic groups had similar recommendations for improving services and programs; however, several African American and Hispanic families also suggested making information more culturally relevant and resources more accessible to families form diverse cultural backgrounds. Conclusions: The findings indicated that further work needs to be done to deliver care that is, indeed, family centered and culturally sensitive. Families' recommendations provide information that health care professionals and policymakers can use to transform rhetoric about family-centered care into action.
1998

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Citation

Garwick AW; Kohrman C; Wolman C; Blume RW, “Families' recommendations for improving services for children with chronic conditions,” Pediatric Palliative Care Library, accessed June 17, 2024, https://pedpalascnetlibrary.omeka.net/items/show/12366.