The needs of professionals in the palliative care of children and adolescents

Title

The needs of professionals in the palliative care of children and adolescents

Creator

Bergstraesser E; Inglin S; Abbruzzese R; Marfurt-Russenberger K; Hosek M; Hornung R

Publisher

European Journal Of Pediatrics

Date

2013

Subject

Adolescent Health Services/ma [Manpower]; Child Care/ma [Manpower]; Health Services Needs and Demand; Palliative Care/ma [Manpower]; adolescent; Child; Humans; Qualitative Research; Surveys and Questionnaires; Switzerland

Description

UNLABELLED: The main objectives of this qualitative study were to describe the perceptions and needs of pediatric health care professionals (HCPs) taking care of children with palliative care needs and to develop a concept for the first Center of Competence for Pediatric Palliative Care (PPC) in Switzerland. Within two parts of the study, 76 HCPs were interviewed. The main interview topics were: (1) definition of and attitude toward PPC; (2) current provision of PPC; (3) the support needs of HCPs in the provision of PPC; and (4) the role of specialized PPC teams. HCPs expressed openness to PPC and reported distinctive needs for support in the care of these patients. The main tasks of specialized PPC teams in Switzerland would encompass the coaching of attending teams, coordination of care, symptom control, and direct support of affected families during and beyond the illness of their child. CONCLUSION: This study indicates the need for specialized PPC in Switzerland both inside and outside of centers providing top quality medical care (Spitzenmedizin). Specialized PPC teams could have a significant impact on the care of children and families with PPC needs. Whether hospices are an option in Switzerland remains unanswered; however, a place to meet other families with similar destinies was emphasized.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

January 2018 List

Collection

Citation

Bergstraesser E; Inglin S; Abbruzzese R; Marfurt-Russenberger K; Hosek M; Hornung R, “The needs of professionals in the palliative care of children and adolescents,” Pediatric Palliative Care Library, accessed December 8, 2021, https://pedpalascnetlibrary.omeka.net/items/show/11253.

Social Bookmarking