Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps

Title

Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps

Creator

Kirch R; Reaman G; Feudtner C; Wiener L; Schwartz LA; Sung L; Wolfe J

Identifier

Publisher

Ca: A Cancer Journal For Clinicians

Date

2016

Subject

Family; National Academies Of Science; Palliative Care; Quality Of Life; Adult; American Cancer Society/organization & Administration; And Medicine (u.S.) Health And; Child; Education/ Organization & Administration; Engineering; Humans; Medical Oncology; Medicine Division/organization & Administration; Neoplasms/rehabilitation/ Therapy; Psychosocial Support Systems; United States

Description

This article highlights key findings from the "Comprehensive Cancer Care for Children and Their Families" March 2015 joint workshop by the Institute of Medicine (IOM) and the American Cancer Society. This initiative convened more than 100 family members, clinician investigators, advocates, and members of the public to discuss emerging evidence and care models and to determine the next steps for optimizing quality-of-life outcomes and well-being for children and families during pediatric cancer treatment, after treatment completion, and across the life spectrum. Participants affirmed the triple aim of pediatric oncology that strives for every child with cancer to be cured; provides high-quality palliative and psychosocial supportive, restorative, and rehabilitative care to children and families throughout the illness course and survivorship; and assures receipt of high-quality end-of-life care for patients with advancing disease. Workshop outcomes emphasized the need for new pediatric cancer drug development and identified critical opportunities to prioritize palliative care and psychosocial support as an integral part of pediatric cancer research and treatment, including the necessity for adequately resourcing these supportive services to minimize suffering and distress, effectively address quality-of-life needs for children and families at all stages of illness, and mitigate the long-term health risks associated with childhood cancer and its treatment. Next steps include dismantling existing silos and enhancing collaboration between clinical investigators, disease-directed specialists, and supportive care services; expanding the use of patient-reported and parent-reported outcomes; effectively integrating palliative and psychosocial care; and clinical communication skills development. CA Cancer J Clin 2016;66:398-407. (c) 2016 American Cancer Society.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

Oncology 2017 List

Collection

Citation

Kirch R; Reaman G; Feudtner C; Wiener L; Schwartz LA; Sung L; Wolfe J, “Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps,” Pediatric Palliative Care Library, accessed September 23, 2021, https://pedpalascnetlibrary.omeka.net/items/show/11144.

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