Indicators for clinical activity in palliative care: The experience of a regional resources team of paediatric palliative care

Title

Indicators for clinical activity in palliative care: The experience of a regional resources team of paediatric palliative care

Creator

Bouffay C; Rollin A; Marcault A; Remy C; Castaing M; Filion S; Petillard E; Fournie F; Schell M

Publisher

Medecine Palliative

Date

2017

Subject

Active List; Activity Indicators; Annual Report; Clinical Intervention Structuring; Neurosciences & Neurology; Pediatric Palliative Care; Regional Resources Teams

Description

Context. - The regional resource teams of pediatric palliative care, like any adult mobile palliative care team in France, have to realize an annual report including several indicators that are often imposed by the regional public health authorities. Our regional resource team of pediatric palliative care raised the question of the relevance and performance of the "active list'' (number of patients) as indicator of the clinical activity. Methodology. - All the situations met by our regional resource team of pediatric palliative between 2011 and 2012 were analyzed and then classified. Results. - Four levels of intervention were identified: The first level consists in answering the questions from the professionals: e.g. symptom management, ethical questions and issues, etc. At this level, the regional resource team of pediatric palliative does not meet the child nor his/her family. It often acts by specific interventions, such as telephone calls or meetings between teams. The second level corresponds to the intervention in collaboration with the specialized reference team. The regional resource team of pediatric palliative then meets the child and his family. The regional resource team of pediatric palliative provides support for professionals and the family on the questions of anticipation, clinical worsening, and/or ethical issues when realizing or omitting therapeutic acts. The hospital team remains the reference team. The third level involves the regional resource team of pediatric palliative in collaboration with the reference team but becomes progressively itself the reference team for the child, his family and other caregivers. This may occur in home-care based situations. This level includes that regional resource team of pediatric palliative often coordinates the home-care providers (nurses, general practitioner, etc.) and that its main activity is to support the families and the child. At this level, the regional resource team of pediatric palliative is called if needed as the first line team. Finally, the fourth level can be summed up as all situations for which the regional resource team of pediatric palliative is the only involved team, e.g. bereavement support. Conclusion. - The approach and the identification of the four levels describe more specifically the clinical activity of the regional resource teams of pediatric palliative in their various assumptions of responsibilities. Further on, it identifies more precisely the implication of all teams involved. Thinking in levels of implication is innovative and adjusted with clinical reality. The levels of intervention may change during the care pathway of each child. This tool for evaluation of the clinical activity finds an interest within our network of all regional resource teams of pediatric palliative. Perhaps its use could also be relevant for other palliative care networks or mobile teams. (C) 2017 Elsevier Masson SAS. All rights reserved.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

December 2017 List

Notes

Bouffay, Clemence Rollin, Audrey Marcault, Anna Remy, Cecile Castaing, Maite Filion, Shirley Petillard, Estelle Fournie, Francoise Schell, Matthias

Elsevier science bv
Amsterdam
2213-0098

Citation

Bouffay C; Rollin A; Marcault A; Remy C; Castaing M; Filion S; Petillard E; Fournie F; Schell M, “Indicators for clinical activity in palliative care: The experience of a regional resources team of paediatric palliative care,” Pediatric Palliative Care Library, accessed September 23, 2021, https://pedpalascnetlibrary.omeka.net/items/show/11045.

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