Decision-making and future planning for children with life-limiting conditions: a qualitative systematic review and thematic synthesis

Title

Decision-making and future planning for children with life-limiting conditions: a qualitative systematic review and thematic synthesis

Creator

Popejoy E; Pollock K; Almack K; Manning JC; Johnston B

Identifier

10.1111/cch.12461

Publisher

Child: Care, Health And Development

Date

2017

Subject

Child Medically Fragile; Decision Making Family; Goal-setting; Human; Systematic Review; Thematic Analysis

Description

Background In the last decade, the number of children with life-limiting and life-threatening conditions in England has almost doubled, and it is estimated that worldwide, there are 1.2 million children with palliative care needs. Families and professionals caring for children with life-limiting conditions are likely to face a number of difficult treatment decisions and develop plans for future care over the course of the child's life, but little is known about the process by which these decisions and plans are made. Methods The purpose of this review is to synthesize findings from qualitative research that has investigated decision-making and future planning for children with life-limiting conditions. A systematic search of six online databases was conducted and identified 887 papers for review; five papers were selected for inclusion, using predefined criteria. Reference list searching and contacting authors identified a further four papers for inclusion. Results Results sections of the papers were coded and synthesized into themes. Nineteen descriptive themes were identified, and these were further synthesized into four analytical themes. Analytical themes were 'decision factors', 'family factors', 'relational factors' and 'system factors'. Conclusions Review findings indicate that decision-making and future planning is difficult and needs to be individualized for each family. However, deficits in understanding the dynamic, relational and contextual aspects of decision-making remain and require further research.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

November 2017 List

URL Address

http://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=124504988&site=ehost-live

Notes

Europe; Peer Reviewed; UK & Ireland. Special Interest: Evidence-Based Practice. NLM UID: 7602632.

Citation

Popejoy E; Pollock K; Almack K; Manning JC; Johnston B, “Decision-making and future planning for children with life-limiting conditions: a qualitative systematic review and thematic synthesis,” Pediatric Palliative Care Library, accessed July 27, 2021, https://pedpalascnetlibrary.omeka.net/items/show/11025.

Social Bookmarking