[retrospective Study Of Children Referred From Paediatric Intensive Care To Palliative Care: Why And For What]

Title

[retrospective Study Of Children Referred From Paediatric Intensive Care To Palliative Care: Why And For What]

Creator

García-Salido Alberto; Santos-Herranz Paula; Puertas-Martín Verónica; García-Teresa María Ángeles; Martino-Alba Ricardo; Serrano-González Ana

Identifier

10.1016/j.anpedi.2016.11.008

Publisher

Anales De Pediatria (barcelona, Spain: 2003)

Date

2017

Subject

Atención Domiciliaria; Cuidados Intensivos Pediátricos; Cuidados Paliativos Pediátricos; Death; Domiciliary Care; Fallecimiento; Gastrostomía; Gastrostomy; Paediatric Intensive Care; Paediatric Palliative Care; Tracheostomy; Traqueotomía

Description

INTRODUCTION: The creation of paediatric palliative care units (PPCU) could optimise the management of children with palliative focus after admission to a paediatric intensive care unit (PICU). This study describes the clinical and epidemiological characteristics of children referred from PICU to the UCPP of the Autonomous Community of Madrid (CAM). The overall treatment, relapses, re-admissions, and deaths, if occurred, are described. PATIENTS AND METHOD: A retrospective review was performed using the medical records from children transferred from the CAM paediatric intensive care units to the paediatric palliative care unit (1 March 2008-31 January 2015). RESULTS: A total of 41 patients were included (26 male/15 female) with a median age of 33 months (range 1-228). In the follow by the UCPP follow-up, the main approaches were respiratory (invasive ventilation with tracheostomy tube 8/41), nutritional (gastrostomy in 20/41), and pharmacological (anti-epileptics in 29/41 and 34/41 on antibiotic treatment). Hospital re-admission was required by 11/41 patients, with no re-admissions to PICU. Of the 13/41 patients who died, 9/13 was at home, with all of them accompanied by the primary caregivers and family, and only 1/9 with the presence of the home team. CONCLUSIONS: The palliative approach at home is feasible in children, and the integration of UCPP could optimise the comprehensive care of previously critically ill children. It is necessary to achieve an optimal domiciliary care should be achieved, and not just because of patient death. More observational, multicentre and prospective studies are needed to confirm these findings.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

June 2017 List

URL Address

http://www.ncbi.nlm.nih.gov/pubmed/28428012

Citation

García-Salido Alberto; Santos-Herranz Paula; Puertas-Martín Verónica; García-Teresa María Ángeles; Martino-Alba Ricardo; Serrano-González Ana, “[retrospective Study Of Children Referred From Paediatric Intensive Care To Palliative Care: Why And For What],” Pediatric Palliative Care Library, accessed May 17, 2022, https://pedpalascnetlibrary.omeka.net/items/show/10902.

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