Children With Intellectual Disability And Hospice Utilization

Title

Children With Intellectual Disability And Hospice Utilization

Creator

Lindley LC; Colman MB; Meadows JTJr

Identifier

10.1097/NJH.0000000000000301

Publisher

Journal Of Hospice And Palliative Nursing

Date

2017

Subject

Child; Comorbidity; Disclose.; Hospice Care; Hospice Enrollment; Hospice Length Of Stay; Hospices; Intellectual Disability; Length Of Stay; Medicaid; Only Child; Pediatric Hospice Utilization; United States

Description

Over 42,000 children die each year in the United States, including those with intellectual disability (ID). Survival is often reduced when children with intellectual disability also suffer from significant motor dysfunction, progressive congenital conditions, and comorbidities. Yet, little is known about hospice care for children with intellectual disability. The purpose of this study was to explore the relationship between intellectual disability and hospice utilization. Additionally, we explored whether intellectual disability combined with motor dysfunction, progressive congenital conditions, and comorbidities influenced pediatric hospice utilization. Using a retrospective cohort design and data from the 2009 to 2010 California Medicaid claims files, we conducted a multivariate analysis of hospice utilization. This study shows that intellectual disability was negatively related to hospice enrollment and length of stay. We also found that when children had both intellectual disability and comorbidities, there was a positive association with enrolling in hospice care. A number of clinical implications can be drawn from the study findings that hospice and palliative care nurses use to improve their clinical practice of caring for children with ID and their families at end of life.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

May 2017 List

Citation

Lindley LC; Colman MB; Meadows JTJr, “Children With Intellectual Disability And Hospice Utilization,” Pediatric Palliative Care Library, accessed July 24, 2021, https://pedpalascnetlibrary.omeka.net/items/show/10830.

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