Factors Associated With Use Of U.S. Community-based Palliative Care For Children With Life-limiting Or Life-threatening Illnesses And Their Families: An Integrative Review

Factors Associated With Use Of U.S. Community-based Palliative Care For Children With Life-limiting Or Life-threatening Illnesses And Their Families: An Integrative Review

Boyden J Y; Curley M A Q; Deatrick JA; Ersek M

10.1016/j.jpainsymman.2017.04.017

Journal Of Pain & Symptom Management

2017

Children And Families; Community; Home; Integrative Review; Life-limiting/life Threatening Illness; Palliative Care

CONTEXT: As children with life-limiting and life-threatening illnesses live longer, challenges to meeting their complex health care needs arise in homes and communities, as well as in hospitals. Integrated knowledge regarding community-based pediatric palliative care (CBPPC) is needed to strategically plan for a seamless continuum of care for children and their families. OBJECTIVE: The purpose of this integrative review paper is to explore factors that are associated with the use of CBPPC for U.S. children with life-limiting and life-threatening illnesses and their families. METHODS: A literature search of PubMed, CINAHL, Scopus, Google Scholar, as well as an ancestry search, to identify empirical studies and program evaluations published between 2000 and 2016. The methodological protocol included an evaluation of empirical quality and explicit data collection of synthesis procedures. RESULTS: Forty peer-reviewed quantitative and qualitative methodological interdisciplinary papers were included in the final sample. Patient characteristics such as older age and a solid tumor cancer diagnosis, and interpersonal factors such as family support were associated with higher CBPPC use. Organizational features were the most frequently discussed factors that increased CBPPC, including the importance of inter-professional hospice services and inter-organizational care coordination for supporting the child and family at home. Lastly, geography, concurrent care and hospice eligibility regulations, and funding and reimbursement mechanisms were associated with CBPPC use on a community and systemic level. CONCLUSION: Multilevel factors are associated with increased CBPPC use for children with life-limiting or life-threatening illnesses and their families in the U.S.

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