The Changing Nature Of Relationships Between Parents And Healthcare Providers When A Child Dies In The Paediatric Intensive Care Unit

Title

The Changing Nature Of Relationships Between Parents And Healthcare Providers When A Child Dies In The Paediatric Intensive Care Unit

Creator

Butler A E; Hall H; Copnell B

Identifier

DOI: 10.1111/jan.13401

Publisher

Journal Of Advanced Nursing

Date

2017

Subject

Bereaved Parent; End-of-life; Grounded Theory; Healthcare Provider; Interaction; Nurse; Paediatric Intensive Care Unit; Relationship

Description

AIM: To explore bereaved parents' interactions with healthcare providers when a child dies in a paediatric intensive care unit. BACKGROUND: Though most children admitted to a paediatric intensive care unit will survive, 2-5% will die during their stay. The parents of these children interact and form relationships with numerous healthcare staff during their child's illness and death. Though previous studies have explored the parental experience of child death in intensive care generally, the nature of their relationships with healthcare providers during this time remains unknown. DESIGN: This study used a constructivist grounded theory approach. METHODS: Data were collected via semi-structured, audio-recorded interviews with 26 bereaved parents from 4 paediatric intensive care units over 18 months in 2015-2016. Constant comparative analysis and theoretical memos were used to analyse the data. FINDINGS: The theory 'Transitional togetherness' demonstrates the changing nature of the parent-healthcare provider relationship across three key phases of the parents' journey. Phase one, 'Welcoming expertise', focuses on the child's medical needs, with the healthcare provider dominant in the relationship. Phase two, 'Becoming a team', centres around the parents' need to recreate a parental role and work collaboratively with healthcare providers. Finally, 'Gradually disengaging' describes the parents' desire for the relationship to continue after the child's death as a source of support until no longer needed. CONCLUSIONS: Findings from this study offer valuable insights into the changing nature of the parent-healthcare provider relationship and highlight the key foci of the relationship at each stage of the parental journey. This article is protected by copyright. All rights reserved.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

September 2017 List

Notes

Using Smart Source Parsing Jul doi: 1111/jan

Citation

Butler A E; Hall H; Copnell B, “The Changing Nature Of Relationships Between Parents And Healthcare Providers When A Child Dies In The Paediatric Intensive Care Unit,” Pediatric Palliative Care Library, accessed October 16, 2021, https://pedpalascnetlibrary.omeka.net/items/show/10765.

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