Communicating Prognosis With Parents Of Critically Ill Infants: Direct Observation Of Clinician Behaviors

Title

Communicating Prognosis With Parents Of Critically Ill Infants: Direct Observation Of Clinician Behaviors

Creator

Boss RD; Lemmon M E; Arnold RM; Donohue PK

Identifier

DOI: 10.1038/jp.2017.118

Publisher

Journal Of Perinatology : Official Journal Of The California Perinatal Association

Date

2017

Description

OBJECTIVE: Delivering prognostic information to families requires clinicians to forecast an infant's illness course and future. We lack robust empirical data about how prognosis is shared and how that affects clinician-family concordance regarding infant outcomes. STUDY DESIGN: Prospective audiorecording of neonatal intensive care unit family conferences, immediately followed by parent/clinician surveys. Existing qualitative analysis frameworks were applied. RESULTS: We analyzed 19 conferences. Most prognostic discussion targeted predicted infant functional needs, for example, medications or feeding. There was little discussion of how infant prognosis would affect infant/family quality of life. Prognostic framing was typically optimistic. Most parents left the conference believing their infant's prognosis to be more optimistic than did clinicians. CONCLUSIONS: Clinician approach to prognostic disclosure in these audiotaped family conferences tended to be broad and optimistic, without detail regarding implications of infant health for infant/family quality of life. Families and clinicians left these conversations with little consensus about infant prognosis.Journal of Perinatology advance online publication, 27 July 2017; doi:10.1038/jp.2017.118.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

September 2017 List

Notes

Using Smart Source Parsing Jul doi: 1038/jp.2017

Citation

Boss RD; Lemmon M E; Arnold RM; Donohue PK, “Communicating Prognosis With Parents Of Critically Ill Infants: Direct Observation Of Clinician Behaviors,” Pediatric Palliative Care Library, accessed October 19, 2021, https://pedpalascnetlibrary.omeka.net/items/show/10763.

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