Parent Perspectives Of Neonatal Intensive Care At The End-of-life
Title
Parent Perspectives Of Neonatal Intensive Care At The End-of-life
Creator
Erin R Currie; Becky J Christian; Pamela S Hinds; Samuel J Perna; Cheryl Robinson; Sara Day; Karen Meneses
Identifier
DOI: http://dx.doi.org/10.1016/j.pedn.2016.03.023
Publisher
Journal Of Pediatric Nursing
Date
2016
Subject
Infant Mortality; Decision Making; Hospitalization; Intensive Care; Palliative Care; Parents & Parenting; Grief
Neonatal Intensive Care Unit; Pediatric Palliative Care; End-of-life Care; Bereavement And Coping; Parental Stress
Description
Highlights
•Parent experiences surrounding end-of-life care in the NICU were explored.
•The opportunity to be a parent was important regardless of the infant's prognosis.
•NICU nurses played a critical role in facilitating parenting.
•Living with life-and-death decisions was an oscillating process for parents.
•There are areas for improvement in palliative and end-of-life care in the NICU.
This descriptive qualitative study explored parent experiences related to their infant's neonatal intensive care unit (NICU) hospitalization, end-of-life care, and palliative care consultation. “Life and death in the NICU environment" emerged as the primary theme with the following categories: ups and downs of parenting in the NICU, decision-making challenges in the NICU, and parent support. Parents encountered challenges with areas for improvement for end-of-life and palliative care in the NICU. Further research is necessary to understand barriers with integrating palliative care and curative care in the NICU, and how NICU care affects bereavement and coping outcomes after infant death.
•Parent experiences surrounding end-of-life care in the NICU were explored.
•The opportunity to be a parent was important regardless of the infant's prognosis.
•NICU nurses played a critical role in facilitating parenting.
•Living with life-and-death decisions was an oscillating process for parents.
•There are areas for improvement in palliative and end-of-life care in the NICU.
This descriptive qualitative study explored parent experiences related to their infant's neonatal intensive care unit (NICU) hospitalization, end-of-life care, and palliative care consultation. “Life and death in the NICU environment" emerged as the primary theme with the following categories: ups and downs of parenting in the NICU, decision-making challenges in the NICU, and parent support. Parents encountered challenges with areas for improvement for end-of-life and palliative care in the NICU. Further research is necessary to understand barriers with integrating palliative care and curative care in the NICU, and how NICU care affects bereavement and coping outcomes after infant death.
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Citation List Month
September 2016 List
Citation
Erin R Currie; Becky J Christian; Pamela S Hinds; Samuel J Perna; Cheryl Robinson; Sara Day; Karen Meneses, “Parent Perspectives Of Neonatal Intensive Care At The End-of-life,” Pediatric Palliative Care Library, accessed April 24, 2024, https://pedpalascnetlibrary.omeka.net/items/show/10682.