"you Know The Medicine, I Know My Kid": How Parents Advocate For Their Children Living With Complex Chronic Conditions

Title

"you Know The Medicine, I Know My Kid": How Parents Advocate For Their Children Living With Complex Chronic Conditions

Creator

Rafferty KA; Sullivan SL

Identifier

DOI: 10.1080/10410236.2016.1214221

Publisher

Health Communication

Date

2016

Description

Caring for a child with a chronic condition has received considerable attention in the pediatric health literature. Today, approximately 1 out of 5 North American children are diagnosed with a chronic condition that requires parents to become caregivers and advocates. Although advocacy is regarded as a significant aspect to parental caregiving, more research is needed to better define this oversimplified and misrepresented concept in clinical practice and research. Subsequently, we interviewed 35 parents of children diagnosed with complex chronic conditions. Within our analysis, we identified three themes that elaborate upon how parental advocacy is socially constructed through communication behaviors and partnerships with other people (e.g., medical professionals, family, school educators). We also discuss the emotional side of advocacy, and proffer suggestions to practitioners who work with parents to form collaborative care teams.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

September 2016 List

Citation

Rafferty KA; Sullivan SL, “"you Know The Medicine, I Know My Kid": How Parents Advocate For Their Children Living With Complex Chronic Conditions,” Pediatric Palliative Care Library, accessed May 23, 2022, https://pedpalascnetlibrary.omeka.net/items/show/10667.

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