"you Know The Medicine, I Know My Kid": How Parents Advocate For Their Children Living With Complex Chronic Conditions
Title
"you Know The Medicine, I Know My Kid": How Parents Advocate For Their Children Living With Complex Chronic Conditions
Creator
Rafferty KA; Sullivan SL
Identifier
DOI: 10.1080/10410236.2016.1214221
Publisher
Health Communication
Date
2016
Description
Caring for a child with a chronic condition has received considerable attention in the pediatric health literature. Today, approximately 1 out of 5 North American children are diagnosed with a chronic condition that requires parents to become caregivers and advocates. Although advocacy is regarded as a significant aspect to parental caregiving, more research is needed to better define this oversimplified and misrepresented concept in clinical practice and research. Subsequently, we interviewed 35 parents of children diagnosed with complex chronic conditions. Within our analysis, we identified three themes that elaborate upon how parental advocacy is socially constructed through communication behaviors and partnerships with other people (e.g., medical professionals, family, school educators). We also discuss the emotional side of advocacy, and proffer suggestions to practitioners who work with parents to form collaborative care teams.
Rights
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Citation List Month
September 2016 List
Citation
Rafferty KA; Sullivan SL, “"you Know The Medicine, I Know My Kid": How Parents Advocate For Their Children Living With Complex Chronic Conditions,” Pediatric Palliative Care Library, accessed February 6, 2025, https://pedpalascnetlibrary.omeka.net/items/show/10667.