The Importance Of Early Involvement Of Paediatric Palliative Care For Patients With Severe Congenital Heart Disease.

Title

The Importance Of Early Involvement Of Paediatric Palliative Care For Patients With Severe Congenital Heart Disease.

Creator

S Bertaud; Lloyd DF; Laddie J; Razavi R

Publisher

Archives Of Disease In Childhood

Date

2016

Subject

Cardiology; Palliative Care; Advance Care Planning; Congenital Heart Disease; End-of-life Care

Description

Growing numbers of patients with severe congenital heart disease (CHD) are surviving into late childhood and beyond. This increasingly complex patient group may experience multiple formidable and precarious interventions, lifelong morbidity and the very real risk of premature death on many occasions throughout their childhood. In this paper, we discuss the advantages of a fully integrated palliative care ethos in patients with CHD, offering the potential for improved symptom control, more informed decision-making and enhanced support for patients and their families throughout their disease trajectory. These core principles may be delivered alongside expert cardiac care via non-specialists within pre-existing networks or via specialists in paediatric palliative care when appropriate. By broaching these complex issues early-even from the point of diagnosis-an individualised set of values can be established around not just end-of-life but also quality-of-life decisions, with clear benefits for patients and their families regardless of outcome.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

April 2016 List

Citation

S Bertaud; Lloyd DF; Laddie J; Razavi R, “The Importance Of Early Involvement Of Paediatric Palliative Care For Patients With Severe Congenital Heart Disease.,” Pediatric Palliative Care Library, accessed October 17, 2021, https://pedpalascnetlibrary.omeka.net/items/show/10475.

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