1
40
1
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1049732305276754" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049732305276754</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Normalization in families raising a child who is medically fragile/technology dependent and developmentally delayed
Publisher
An entity responsible for making the resource available
Qualitative Health Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
U.S. Gov't; Adaptation; PedPal Lit; Extramural Research Support; N.I.H.; Non-U.S. Gov't Research Support; but it has not been examined in families whose children have both complex physical and developmental disabilities. Developmental delays compounded the effects of the children's physical chronic conditions; P.H.S. Schools; parents recognized normal and positive aspects of their lives while acknowledging the profound challenges that their families faced. Parents concluded that it was possible to have a good life that was not necessarily normal by usual standards .; Preschool Chronic Disease Comparative Study Cost of IllnessDevelopmental DisabilitiesDisabled Children Family/psychology Humans Qualitative Research Research Support; Psychological Caregivers/psychology ChildChild Rearing Child; severely affecting how families organized and managed their daily lives; with the result that families did not fit currently established attributes of normalization. Instead
Creator
An entity primarily responsible for making the resource
Rehm RS; Bradley JF
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1049732305276754" target="_blank" rel="noreferrer">10.1177/1049732305276754</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adaptation
Backlog
Bradley JF
but it has not been examined in families whose children have both complex physical and developmental disabilities. Developmental delays compounded the effects of the children's physical chronic conditions
Extramural Research Support
Journal Article
N.I.H.
Non-U.S. Gov't Research Support
P.H.S. Schools
parents recognized normal and positive aspects of their lives while acknowledging the profound challenges that their families faced. Parents concluded that it was possible to have a good life that was not necessarily normal by usual standards .
PedPal Lit
Preschool Chronic Disease Comparative Study Cost of IllnessDevelopmental DisabilitiesDisabled Children Family/psychology Humans Qualitative Research Research Support
Psychological Caregivers/psychology ChildChild Rearing Child
Qualitative Health Research
Rehm RS
severely affecting how families organized and managed their daily lives
U.S. Gov't
with the result that families did not fit currently established attributes of normalization. Instead