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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2022 List
URL Address
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/02692163221093145</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Inequalities in Access to Bereavement Support Before and During COVID-19: Findings from Voluntary and Community Sector Bereavement Services in the UK
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
bereavement; child; hospice; human; female; male; attention; bereavement; palliative; organization; gender; welfare; therapy; support; study; pandemic; disease; 2019; clinical; population; abstract; conference; controlled; major; social; and; ethnic; coronavirus; disadvantaged; group; media; minority; sexual
Creator
An entity primarily responsible for making the resource
Selman L; Sutton E; Medeiros Mirra R; Goss S; Longo M; Seddon K; Penny A; Wakefield D; Nelson A; Byrne A; Harrop E
Description
An account of the resource
Background/aims: The COVID-19 pandemic has resulted in global mass bereavement; in the UK alone there have been 140,000 deaths to date, with a disproportionate impact on Black, Asian or minoritized ethnic (BME) communities. Voluntary and community sector (VCS) bereavement services including hospices play an important role in bereavement support. We aimed to determine services' perspectives on access to their support.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">10.1177/02692163221093145</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
abstract
and
Attention
Bereavement
Byrne A
Child
Clinical
Conference
controlled
coronavirus
disadvantaged
Disease
ethnic
Female
Gender
Goss S
group
Harrop E
Hospice
Human
Longo M
Major
Male
Medeiros Mirra R
media
minority
Nelson A
Organization
Palliative
Palliative Medicine
Pandemic
Penny A
Population
Seddon K
Selman L
September 2022 List
Social
study
Support
Sutton E
Therapy
Wakefield D
welfare
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
December 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2018 List
URL Address
<a href="http://doi.org/10.1002/pbc.27455" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.1002/pbc.27455</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A possibility for strengthening family life and health: Family members' lived experience when a sick child recieves home care in sweden
Publisher
An entity responsible for making the resource available
Pediatric Blood and Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
mother; responsibility; personal experience; family life; home care; nonhuman; childhood cancer; sibling; wellbeing; genetic transcription; expectation; conference abstract; human; child; female; male; interview; clinical article; attention; father; Sweden; lion; welfare
Creator
An entity primarily responsible for making the resource
Castor C; Hansson H; Landgren K; Kristensson HI
Description
An account of the resource
Background/Objectives: Families often prefer home care to hospital care, and home-care services for ill children are increasing worldwide with limited knowledge of families' needs during curative and palliative home care. The aim of this study was to elucidate family members' lived experience when a sick child received home care from county-based healthcare services. Design/Methods: A descriptive qualitative design was chosen. Twelve families including sick children receiving home care and their mothers, fathers and siblings in the south of Sweden were interviewed between December 2015 and January 2017. The transcribed interviews were analyzed using a hermeneutic phenomenological approach. Results: The family members' lived experience was described in three essential themes. Strengthening family life relates to how home care induced freedom and luxury in a strained period of life and supported the families' everyday life. Usual social activities and relations were maintained as time and energy was saved when receiving home care. Promoting health relates to how the family members' burden of illness decreased as the child's signs of illness alleviated and the well-being of the whole family increased when the child received care in the home. This provided a peaceful respite for family members' psychosocial recovery. The third theme, Creating alliances, relates to the importance of creating trustful alliances for communicating participation in care. If trustful alliances were not created, parents felt an overwhelming responsibility and family members became anxious. Conclusions: The findings suggest that care in the family's home is a useful complement to hospital care when given with close attention to family members' needs, as positive effects of home care might be jeopardized when expectations are not successfully shared. The study was funded by the Swedish Childhood Cancer Foundation, The Swedish Research Council for Health, Working Life and Welfare, The Lions Research Foundation, and The Jonas Foundation.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.27455" target="_blank" rel="noreferrer noopener">10.1002/pbc.27455</a>
2018
Attention
Castor C
Child
Childhood Cancer
Clinical Article
conference abstract
December 2018 List
Expectation
Family Life
Father
Female
genetic transcription
Hansson H
Home Care
Human
Interview
Kristensson HI
Landgren K
lion
Male
Mother
Nonhuman
Pediatric Blood and Cancer
Personal Experience
responsibility
Sibling
Sweden
welfare
Wellbeing