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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2023 Special Edition 1 - Parent Perspectives List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2023 SE1 - Parent Perspectives
URL Address
<a href="http://doi.org/10.1097/mlr.0000000000001588" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1097/mlr.0000000000001588</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Short-term Focused Feedback: A Model to Enhance Patient Engagement in Research and Intervention Delivery
Publisher
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Medical Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Creator
An entity primarily responsible for making the resource
Sauers-Ford H; Statile AM; Auger KA; Wade-Murphy S; Gold JM; Simmons JM; Shah SS
Description
An account of the resource
BACKGROUND: Our grant from the Patient-Centered Outcomes Research Institute (PCORI) focused on the use of nurse home visits postdischarge for primarily pediatric hospital medicine patients. While our team recognized the importance of engaging parents and other stakeholders in our study, our project was one of the first funded to address transitions of care issues in patients without chronic illness; little evidence existed about how to engage acute stakeholders longitudinally. OBJECTIVE: This manuscript describes how we used both a short-term focused feedback model and longitudinal engagement methods to solicit input from parents, home care nurses, and other stakeholders throughout our 3-year study. RESULTS: Short-term focused feedback allowed the study team to collect feedback from hundreds of stakeholders. Initially, we conducted focus groups with parents with children recently discharged from the hospital. We used this feedback to modify our nurse home visit intervention, then used quality improvement methods with continued short-term focus feedback from families and nurses delivering the visits to adjust the visit processes and content. We also used their feedback to modify the outcome collection. Finally, during the randomized controlled trial, we added a parent to the study team to provide longitudinal input, as well as continued to solicit short-term focused feedback to increase recruitment and retention rates. CONCLUSION: Research studies can benefit from soliciting short-term focused feedback from many stakeholders; having this variety of perspectives allows for many voices to be heard, without placing an undue burden on a few stakeholders.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/mlr.0000000000001588" target="_blank" rel="noreferrer noopener">10.1097/mlr.0000000000001588</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
2023 SE1 - Parent Perspectives
Academies and Institutes
Aftercare/psychology
Auger KA
Gold JM
House Calls
Medical Care
Patient Outcome Assessment
Patient Participation
Pediatric
Psychology
Sauers-Ford H
Shah SS
Simmons JM
Stakeholder Participation
Statile AM
statistics & numerical data
statistics & numerical data Child Focus Groups Hospitals
statistics & numerical data Humans Parents/psychology Patient Discharge
Time Factors
Transitional Care
Wade-Murphy S
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2125.2004.02211.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2125.2004.02211.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Changes in availability of paediatric medicines in Australia between 1998 and 2002
Publisher
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British Journal of Clinical Pharmacology
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit; Administration; trends Pharmaceutical Preparations; and those both licensed for paediatric use and subsidized increased from 356 (23.1%) to 441 (23.2%). The number of medicines with formulations suitable for paediatric use increased from 861 (55.7%) to 967 (50.8%); but not for children under the age of two years.; ei ght (9%) for 2-11 years and 12 (13%) for 12-18 years. An additional 14 orally available chemical entities previously only licensed for adults; licensed medicines available in Australia in the calendar years 1998 and 2002 were examined. RESULTS: The total number of medicines licensed in Australia increased from 1544 to 1903; Newborn Licensure; Oral Adolescent Age Factors Australia Chemistry; Pharmaceutical Child Child; Preschool Dosage Forms Drug Approval/statistics & numerical data Humans Infant Infant; statistics & numerical data; the number of licensed paediatric items increased from 579 (37.5%) to 725 (38.1%); trends Pediatrics; were licensed for children by 2002. CONCLUSIONS: There have been some improvements in medicines licensing for older children
Creator
An entity primarily responsible for making the resource
Chui J; Tordoff J; Reith D
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2125.2004.02211.x" target="_blank" rel="noreferrer">10.1111/j.1365-2125.2004.02211.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Administration
and those both licensed for paediatric use and subsidized increased from 356 (23.1%) to 441 (23.2%). The number of medicines with formulations suitable for paediatric use increased from 861 (55.7%) to 967 (50.8%)
Backlog
British Journal of Clinical Pharmacology
but not for children under the age of two years.
Chui J
ei ght (9%) for 2-11 years and 12 (13%) for 12-18 years. An additional 14 orally available chemical entities previously only licensed for adults
Journal Article
licensed medicines available in Australia in the calendar years 1998 and 2002 were examined. RESULTS: The total number of medicines licensed in Australia increased from 1544 to 1903
Newborn Licensure
Oral Adolescent Age Factors Australia Chemistry
PedPal Lit
Pharmaceutical Child Child
Preschool Dosage Forms Drug Approval/statistics & numerical data Humans Infant Infant
Reith D
statistics & numerical data
the number of licensed paediatric items increased from 579 (37.5%) to 725 (38.1%)
Tordoff J
trends Pediatrics
trends Pharmaceutical Preparations
were licensed for children by 2002. CONCLUSIONS: There have been some improvements in medicines licensing for older children
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/bmj.330.7500.1151" target="_blank" rel="noreferrer">http://doi.org/10.1136/bmj.330.7500.1151</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Do selective serotonin reuptake inhibitors cause suicide? Antidepressant prescribing to children and adolescents by GPs has fallen since CSM advice
Publisher
An entity responsible for making the resource available
British Medical Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit; statistics & numerical data; Adolescent Antidepressive Agents/; adverse effects Child Depressive Disorder/drug therapy Humans Odds Ratio Physician's Practice Patterns/statistics & numerical data Risk Factors Serotonin Uptake Inhibitors/; adverse effects Suicide/
Creator
An entity primarily responsible for making the resource
Murray ML; Wong IC; Thompson M
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/bmj.330.7500.1151" target="_blank" rel="noreferrer">10.1136/bmj.330.7500.1151</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adolescent Antidepressive Agents/
adverse effects Child Depressive Disorder/drug therapy Humans Odds Ratio Physician's Practice Patterns/statistics & numerical data Risk Factors Serotonin Uptake Inhibitors/
adverse effects Suicide/
Backlog
British Medical Journal
Journal Article
Murray ML
PedPal Lit
statistics & numerical data
Thompson M
Wong IC
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1200/jco.2005.02.6591" target="_blank" rel="noreferrer">http://doi.org/10.1200/jco.2005.02.6591</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Hospice referral practices for children with cancer: a survey of pediatric oncologists
Publisher
An entity responsible for making the resource available
Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
PedPal Lit; location of death; statistics & numerical data; Adult Female Health Care Surveys; Hospice Care Humans Male; Medical Oncology/statistics & numerical data Middle Aged Multivariate Analysis Neoplasms/complications/drug therapy/psychology/; Pediatrics/statistics & numerical data Physician's Practice Patterns/; Psychological/etiology/therapy Terminal Care United States; Referral and Consultation Stress; therapy Pain/etiology/therapy
Creator
An entity primarily responsible for making the resource
Fowler K; Poehling K; Billheimer D; Hamilton R; Wu H; Mulder J; Frangoul H
Description
An account of the resource
PURPOSE: To examine hospice referral patterns among pediatric oncologists and identify barriers to referral. METHODS: A self-administered survey was sent to 1,200 pediatric oncologists who are members of Children's Oncology Group. Two electronic mail messages followed by traditional mail surveys were sent to eligible physicians. Pediatricians and pediatric oncologists developed, pretested, and modified the survey for item clarification. RESULTS: Of 944 eligible pediatric oncologists surveyed, 632 replied, yielding a response rate of 67%. Most respondents reported having access to palliative care programs (65%) and hospice services (85%), but few (27%) had access to inpatient hospice services. More respondents reported feeling comfortable managing end-of-life pain than psychological issues (86% v 67%, respectively). Many pediatric oncologists (62%) reported that half or more of their patients died in the hospital. In multivariate analysis, physicians with access to hospice that accepts patients receiving chemotherapy had more patients die at home than in hospital compared with physicians without access to such services (P = .007). The probability of hospice referral was positively associated with the presence of a hospice facility (P < .001) and with a larger size oncology group (P = .024). Only 2.5% of respondents referred patients at the time of relapse. Continued therapy was cited as the most common reason for not making a referral, and was significantly higher when hospice did not admit children receiving chemotherapy (P = .002). CONCLUSION: Hospice referral for children with cancer is usually made late in the course of their disease and might improve if hospice admits patients who are actively receiving chemotherapy.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/jco.2005.02.6591" target="_blank" rel="noreferrer">10.1200/jco.2005.02.6591</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adult Female Health Care Surveys
Backlog
Billheimer D
Fowler K
Frangoul H
Hamilton R
Hospice Care Humans Male
Journal Article
Journal Of Clinical Oncology
Location Of Death
Medical Oncology/statistics & numerical data Middle Aged Multivariate Analysis Neoplasms/complications/drug therapy/psychology/
Mulder J
Pediatrics/statistics & numerical data Physician's Practice Patterns/
PedPal Lit
Poehling K
Psychological/etiology/therapy Terminal Care United States
Referral and Consultation Stress
statistics & numerical data
therapy Pain/etiology/therapy
Wu H